neurofibromatosis type 1
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All Comments (73)
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Hey man. Just wanting to wish you luck. I know what you are going through. I have had a lot of MRI's and Three Brain surgrys. All I can say is goold luck from one Brian to another keep stong
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@DJDubz1977 So yes, I know that they all should just shut up and stop making fun of us. My own family disowned me due to me being different than them,. I sure wish they knew how it feels. I was the unlucky one to be born with this evil disease. I hate it.
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@DJDubz1977 You're welcome; and yes I know they could not even do it for a day. I have the bad case of NF and I have also lost my leg due to a growth that I had and after having so many surgeries on it it just was not able to be done anymore. I got an infection that the doctor left wide open to the bone for a year and half it was nasty but lost it due to both I also lost my eyesight in my right eye due to a tumor that could not be removed. It is behind the eyesocket; the other eye is going also
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@LarrysGirl2006 Thankyou for standing up ... All I have to say to the haters, the trolls, the people making fun of people with NF is, get a life. Try living with what we go through for one week. The pain, the nerves and everything else. Lets take your eyesight away, your hearing, your speech away for one week. What if you go out tonight, get in an accident, and become paralyzed. How would you feel if someone made fun of you. HAHA Look at the dude in the wheelchair, he cant walk EVER AGAIN
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@Hutchie281081 You rock sir
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Hi Brian, I'm Nikos 28 years old from Greece, I also have a nf1 and hydrocephalus from the day I was born and in the last three years have started to appear on my body small tumors (previously I only had brown spots - signs, no tumors). Fortunately so far none of these tumors were not malignant, but every time they appeared a new tumor until proven that there is no malignancy i was worried. I hope you all go well, we go all right all of us NF1 humans and live normal lives for many years.
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@xXIDanIZz You are so rude- that is all I can say...
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@WORMGERM- people do and CAN die from this disease... Do not dare call people gay from this disease. You seem like someone who just does not care for anyone. Here you are making fun of people on their spelling and this disease. Hey it I had a wish it would be NOT TO HAVE IT AND NOT TO BE DYING FROM IT. So watch what you are saying to people. Love yourself before you dison other people. Brain I am sure he wishes NOT to have this disease. I know I hate it and I am very rare and carry both...
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@WORMGERM- she copied how to spell "Neurofibromatosis" also people can have a typo- does not mean that they cannot spell. Also some people can spell the big words and not the small ones. Why, be so rude to someone maybe the person could have something wrong with them? I really dislike people like this who say things about people when they do not know them. Or even know what is going on with the person. Like myself I have less than a year to live and my skull is hanging out due to NF-
Brian just to let you know that a lot of people out here really enjoy your videos and think you're a cool guy. Hope everything works out for you and that you continue making videos for many years to come.
Hate the haters!
Hutchie281081 2 years ago 7
God bless you Brian. Hope you gett better soon. Stay strong.
Whopzer 2 years ago 6