Infantile Spasms
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This is so hard to watch. Thank you for sharing, it helps me understand as a nursing student. My niece also had a single spasm that we caught and treated them w ACTH.
To help me "see" these as specifically spasms vs a seizure, tic, or even GERD/hiccups... Do I correctly observe an inward movement, in other words like he is instantaneously going into a fetal position, then it relents?
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So sad God bless and love from my heart
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WHat a handsome little chap. He must bring you daily joy. God Bless x
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I honestly cried! He is beautiful and I pray for him!
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a boy i know has a helmet.. i know it looks a bit sad but he doesn't hurt his head over and over again.. idea?
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try Quantum Touch ------
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His seizures are a little better. He has a helmet but doesn't like to wear it. His shoulder harness now stops him from hitting his face on anything. Hopefully new meds will help him soon!
bucyboy 3 weeks ago
wouldn't he be more comfortable lying down so he doesn't hit his face? How often does he have these? Doesn't his spinal cord get whiplashed? Are muscle relaxers out?
MrMcshane70 4 months ago
@MrMcshane70 He was having up to 100 seizures a day. He is and has been on many different medications. He is now 6 years old and they are not as severe as you see here, how-ever he still has several episodes a day. He goes to school and for the most part is a happy little boy. He's a good spirit and we feel blessed to have him. We will continue to do what-ever we can to make his life the best it can be. Thanks for your concern.
bucyboy 4 months ago
@MrMcshane70 His seizures are a little better. He has a helmet but doesn't like to wear it. His shoulder harness now stops him from hitting his face on anything. Hopefully new meds will help him soon!
bucyboy 3 weeks ago
They say there is no cure for Thomas. They don't believe he will ever walk or talk. He loves to go to school, but now the state says we either have to update all his immunizations or get a doctors note saying he shouldn't have them or he can no longer go to school.
bucyboy 1 year ago
The problem is, it was the Dtap shot that made him this way. He began seizing 2-3 days after his 4 month shot. Another shot could kill him or leave him totally brain dead. It's a terrible situation. They all know the shot did this to him, but they say it's for the greater good. VAERS still won't compensate my son, they just say the heck with him, oh well, we're sorry and too bad!
bucyboy 1 year ago