Gut Failure in Rett Syndrome~Melody Ballard

My Daughter Melody's gut has failed, this is her story xx

Category:

Music

Tags:

• gut failure
• rett syndrome
• tpn
• just the way you are
• bruno mars

[kazzMarie]

Unfortunately not Lavinco as anything that goes into her stomach or jej her gut rejects and causes severe pain xx

[kazzMarie]

I'm glad you found something that works Lavinco :) Its great to hear possitives. Unfortunately for Melody, She can no longer eat or drink anything at all as her gut failed and causes severe pain with is heart breaking. I cant even brush her teeth anymore either as the tooth paste even causes pain xx

[tericarter1981]

I cannot believe you have been criticised for sharing your heartbreaking story. You are clearly a devoted mother, agonised by the pain & suffering your beautiful brave daughter is having to endure. As a mother myself, my heart goes out to you & your family, & I feel eternally blessed for having a happy healthy child. I truly hope a cure is found for little Melody. Don't give up the fight xxx

[bingobills]

Sad and beautiful, I wish you all the help and strength to get through this.

[ksparrowe]

We have used "Nature's Sunshine LB extract" to help with Brooklynn's gut problems. We sleep now, no more pain bouts, gained 5 POUNDS IN ONE MONTH! We are going to try the "food for blood type" regimen. We'll see.

We are thinking of you and your family. Thank-you for educating us all!! :)

[paul5bass]

Melody is such a gorgeous little girl.. Whatever problem is thrown at her, she battles on regardless.

Her eyes & expressions, say more than a 1000 words.

Her love for her mummy & brother is so strong, as is the love she gets from those all around her.

Karina, Melody & Adam. You are all so strong

[daraandfrank]

I wanna cry .video was beautiful.your daughter is beautiful too.Andera know we dont talk much but my thoughts n prayers are there 4 you n your little girl.

[Lavinco]

@kazzMarie are you able to feed her juice through her gtube?

[Lavinco]

Our daughter has Rett Syndrome too, and no one could help us with her bowel issues, so we asked God for guidence and this is what we learned.

The only thing that has ever worked for our girl's diarrhea issues is fresh juice of 50/50 carrots/celery with one apple. It works immediately and only takes a few ounces a day. She is 4 with type r294x of the mecp2 mutation.