Cystic Fibrosis- A little bit longer.
Uploader Comments (HjayAndLuu12)
Video Responses
All Comments (34)
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My Brother was 22 and he had cystic fibrosis. He had a lung transplant and a little less then a month ago, he passed away. I miss my brother like crazy and I know that all he really wanted was to find a cure for CF. Every year me and my family go to one of those "Walk to cure CF" walks and try to raise money to stop CF. And to everyone that has CF, hold on and breathe easy :)
RIP Stephan Alpert and all others that have lost their life to CF
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my brother is 18 and has cystics fibrosis. hes always going into hospital and when he was little we were told he was only ganna live to 12 well he has past it and i never wanna let him go he is my only older brother and we are really close. he is still in and out of hospital all the time but i sit in my room and cry sometimes coz i know how hard he has it and how it just dosnt effect him but my family. and just thinking he could pass on at anytime is the worst thought i could ever think off :'(
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i have cf..and im 12..but i have more severe digestive then lungs...but im thankful for still being alive(:
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I have to say I really agree with what you said in the description about us CFers being somewhat special and chosen to inspire others. I've noticed that a lot of people with CF (including myself) tend to have a more positive and gracious outlook on life, and I'm thankful for every moment I have with my friends and to do the things I love, and for every moment I'm not ill.
So, I hope you're doing well in health and the rest of your life, and thanks for the beautiful vid to all of us!~
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i know how you fell my cousin had cf and its hard but i love her sooo much i cant live without hier
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hi
you are right statistics, they aren't always right,i know two persons.one is 38years and the other 42,both rewborn after the lung transplant...
stay all strong and healthy
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Hi,
I have CF and 2 years ago I had a double lung transplant. I just celebrated my 30th birthday! I have close friends who are 34yrs old, another one is 38yrs old and I have a friend who lived to 40 and had 2 children. We were all told the median age of our life was maybe 15yrs old. . So don't worry so much about statistics, they aren't always right! Stay hopeful and strong!
I have a video of my transplant journey, just look up my channel under buggerjlewis :)
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Hey codeblue96.. i have sever CF ,
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hey i am 13 as well and not to burst your bubble but you have a bigger chance of dyeing in your teen years and yes you can die before or after 32 there is this one guy who is 65 with cf but all depends on what you whant . i whant to die and i have sever cf so there for there is a big chance of me dyeing in my teen years .!!! but it depens if you have mild or sever or deathly bad ask your parents or doctor .
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yes we r. rock on cystic fibrosis teen kids audlts. we can all make it:)
Simply beautiful. I will send this video to my subscribers. We need to spread awareness of CF!
stonesfanatik 3 years ago
thankyou hun =]
HjayAndLuu12 3 years ago
i will share..!
this video has shown me that behind the YouTube 'faces' [i.e. accounts] behind the chirpy videos and special effects, there are real people who have real problems and i think you are a huge inspiration honey...
the way you just face the problem gives me courage
<3
NiaMiaDramaQueen 3 years ago
Thankyou so mucch! x
HjayAndLuu12 3 years ago
great vid, wouldve been good if the photos at 2 mins were shown abit longer but its a great message! btw i do know you're other account thats how i got ur this account.thanks for the uploads aswell! ur brill!
chicharwali 3 years ago
thankyou hun please please can u share this video with everyone u know please the more people who know about it the closer we are to finding a cure....
HjayAndLuu12 3 years ago