Amber - CDKL5.wmv
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Uploaded by carolanne37 on Jul 25, 2011
Amber Partridge, CDKL5 Diagnosis, showing that nothing gets her down!!
Uploader Comments (carolanne37)
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All Comments (4)
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Yes we are on Facebook at Alan-Amy Gordon and at prayers for Amber with RETT Syndrome. Thank you.
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my lovely amber x
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I was very touched by your sweet little Amber. Maybe because I have one of my own. Her name is Amber Elizabeth Gordon, she is 2 years old. We live in Kannapolis, NC in the US. She was born April 10, 2009. We found out on May 16, 2011 that she has Rett syndrome. We are still getting over the shock. As of now Amber can not walk or talk. She is very close to walking. She loves to crawl all over the place. She seems to be a very happy little girl. We have been blessed.
alanamyadam 6 months ago
@alanamyadam Thank you, I am sorry that you have had the diagnosis of Rett Syndrome, I hope that your little Amber does walk. Are you on Facebook? The is a large Rett Community on there. My Ambers condition CDKL5 is also referred to as Atypical Rett Syndrome. Thank you for taking the time to comment on my little Angel.
carolanne37 5 months ago