Encounters with the Invisible, by Dorothy Wall

Dorothy Wall talks about her book on chronic fatigue syndrome, a blend of her personal story and the history, science and politics of the illness.

Category:

News & Politics

Tags:

• CFS
• FM
• CFIDS
• chronic fatigue syndrome
• fibromyalgia
• book
• Dorothy Wall

[dorothywall]

Thanks for your comment. CFS in those over 60 is an understudied area, and one that needs attention. The Fall 2007 issue of the CFIDS Chronicle has an excellent article on CFS and aging. I suggest starting there. Staying active is so important, as you say, but those of us with ME/CFS also have to pace ourselves. Finding the right balance by listening to our bodies is key. Sending my good wishes for your health.

[VideoGirlDolcezza]

The best book I've read on CFS/ME. 

[SAMMYBABYLOVE]

I just want to let you i go through m.e each day! ive had it since i was 13 im 23 now!but i am a mild suffer now!, i know what you go through ive been there!i was house bound for over a year but now im a little better im gunna make a change...i hope you will support my cause!!! Next year im doing a big campaign for awareness for m.e/cfs...so watch this space!! just watch me we deserve rights!take care everyone!! I ma also a writer! well done dorthy!

[dsicequeen]

Must get my hands on this book! CFS is frustrating enough without people believing in your illness!

[xylina12]

The poor rating comes from the her slam on traditional values, talking about how she meant to contribute instead of being some "19th century neuresthetic (sp?) woman"

Guess what? CFIDS hits homemakers too. One does not have to be a feminist to have a active meaningful life that CFIDS severely disrupts. The many essential functions we have in the home are all the easier seen when we can perform so few of them.

[ixchelkali]

Funny, you don't LOOK sick...

I'm glad to see this video because it gives me a chance to thank you for writing your book. It's the best account of what it's like to live with chronic fatigue syndrome that I've read. I want to press it into the hands of everyone who knows me and beg "please read this so you'll understand." And I was able to read it even while seriously brain-fogged. Thank you, Dorothy Wall! And everyone else, READ THIS BOOK.

[stacylaraa]

I can relate...I had just graduated from college when I was struck and it has been very frustrating. Luckily I have caring people in my life

[Jerry23dec1982]

Isn't it strange that we all got sick right after Aspartame was approved for use in human food in 1980! Read the side affects of aspartame, put them next to a list of CFIDS symptoms, they are identical. I was poisoned and permanently damaged by aspartame in the 1980's and no representative of the pharmacutical companies [what you call your doctor] is going to admit to a connection.

[SDD2701]

Thank you, Dorothy Wall ! I am one of the millions of people who was diagnosed with CFS and know how devestating this illness is. I believe the worst part is not enough support from the medical community and the public.

Removing the doubt is part of the cure !

[pandoranet]

Dorothy,

Advocacy is my hobby one that I am able to do and brings me great personal satisfaction. I now have a blog too titled Agentforchange which can be found on Blogger on Google. I wish you continuing success with your book!