LiamKnott's Story
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Uploaded by liamisspiderman on May 21, 2008
Liam was born with CDH Congenital Diaphragmatic Hernia cdh.support.org
Uploader Comments (liamisspiderman)
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All Comments (4)
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thanks so much I'm also sharing his road to recovery on you tube.......
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how sad!
3 years ago 2
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an amazing story, my baby girl was born with cdh and can totaly relate to the feeding problems. where was the feeding clinic you took him to and what were the feeding issues he had? x x x
wakey198121 3 years ago
Hi, Feeding clinic was in Charlottesville, Virgina USA - Kluge children's rehab clinic.
Liam had an oral aversion to food! Was ventilated for 3months so didnt know how to suck and swallow. After one week at Kluge Liam was eating his daily calorie intake without being topped up via his tube.
If you want Kluge's details - pls give me a hoe!
liamisspiderman 3 years ago
its is so hard to have your child go through what he did my son is going through that too but he was on ECMO for 2 1/2 weeks....
He is a very strong boy...
Hosay101 3 years ago 2
All the very best with your son.
liamisspiderman 3 years ago