How I was diagnosed with Klinefelter's syndrome

Information not too many other XXY's are prepared to share, either they don't know, or they were diagnosed prenatally or to them it doesn't matter.

Late In 1976 I was diagnosed with Klinefelter's syndrome which was confirmed by Karyotype in 1977.

My visible symptoms at the time were very thin build, no musculature, no facial and sparse body hair, female pattern pubic hair, normal penile and scrotal development, small firm testes (or testicles if you prefer?) No breast tissue was present, my span was greater than my height (all these things are relevant), I was not over 6 feet tall, merely 5'8" and I had broader hips than chest. My complexion was very pale, anemic almost.

The hidden symptoms revealed by blood tests were elevated LH (Luteinizing Hormone) and FSH (Follicle Stimulating Hormone) and low normal testosterone.

LH tells the testes to make testosterone and increases if there is insufficient testosterone production, FSH tells the testes to make sperms and also increases when insufficient sperm is created.

By mid 1977 I had testicular failure and had no testosterone production from my testes. I was 16.5 years old. It is estimated I developed Klinefelter's syndrome itself when I was 14 years old.

You may be interested to know that testicular volume by age 16 ought to be somewhere between 15 and 25mls volume, mine at age 16 were 1.0mls volume.

At that time I had my ejaculate tested and was found to have Azoospermia, which means I had no sperm at all. I began testosterone therapy in October 1977 and have not ceased since.

My experience indicates the earlier the diagnosis the better, preferably before the onset of puberty. Recent information indicates there may be a greater chance of recovering viable sperms from XXY boys for storage later in life.

In my biased opinion, all boys who have learning difficulties should be Karyotyped just to see if they are XXY, obviously for their benefit alone.

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[morued]

Have a question? I may be the early sexual impotence, I am healthy and do a lot of exercise of it, do not eat flour or sodas but .. I read that the XXY KS, suffer from impotence at an early age ... I hope that testosterone therapy I remove all the symptoms: according to the books will suffer ... very thanks friend ......

[XXY4Life1]

@morued Sexual dysfunction ought to be a problem for men with KS, it is hypogonadism after all - that is low testosterone. So in theory if you're getting the right level of testosterone sexual dysfunction ought not occur, but then again XXY guys can have all sorts of psychological problems, which may not be resolved by testosterone therapy. If I told you all your problems would be solved with T therapy and they weren't you'd not be very happy with me. Wait and see what happens.

[morued]

and the endocrinologist told me that I am sterile, my testicles are very small, I am hairless, I never had a mustache, and I have my pear shaped body, although I do plenty of exercise, I have a tendency to have the body of lady. the truth, I have all the features of a ks xxy, I never had given the task of researching, until about a month ago that I started getting more on the subject, and I really feel very bad. thanks for your advice, I wish to be in communication with you. Success!

[XXY4Life1]

@morued I told my Endocrinologist I was sterile, I told him I found no sperm and he described that in a letter as "azoospermia." One you know for sure then you know how to proceed, but if you're single and know you're infertile it's a bit of a worry, I found, finding a partner. Not for many years did I discover many women prefer sex with sterile men, they never have to use birth control, that's a bonus. :) I have a typical male body shape and what I regard as normal testosterone levels.

[morued]

is true, I have my testosterone very low, and before I was in therapy, but stopped, now I'm back to injecting it, I do not have sperm, when I attended high school, we made​a semen samples, and was the only the set of boy showed no sperm, it is more, my semen volume was very low, very low average, the 23 years I went back to do other semen samples,

[XXY4Life1]

@morued I tried to lower my testosterone intake by stretching out the time between injections, but that failed, I found I was suffering from impotence at 10 day intervals. I've now gone back to weekly intervals and dropped from 125mgs to 100mgs, and changed the site of the injection to my thigh instead of my buttock. I'm constantly interested in sex, just the way I like to be. I understand men are usually constantly interested in sex. :)

[doggy255]

Hi ! Thanks for sharing your videos. I assume you are on testosterone therapy, was wondering how this has effected you mentally? I fear I have low Testosterone (I experience anxiety, low self confidence, trouble concentrating, can't grow facial hair, gynecomastia, no drive in life, trouble verbalizing thoughts) and was wondering if you experienced any of these symptoms and if testosterone therapy helped you at all with them?

[XXYforLIFE]

@thrashdouche21 I don't think so, even if she says so. XXXY's are mentally retarded.

[XXYSexChromosomes]

That's weird YouTube, this video in a search has 200 or so more views than the video itself is displaying, why is that? Are the YouTube staff very strange? Yes they are!

[thrashdouche21]

caroline cossey had xxxy type

[morued]

many thanks, you have comforted me very well .. if I'm single and I will marry soon, so three years ago I talked with my girlfriend and she accepted, was happy, because she did not want children, but deep down I know she'll want children someday, so why now that she is happy, says he may never padesca that cysts in her womb, because of the pills, or maybe never be claimed to condoms he he he he ...