Teen with MS...again

more bloging answering some questions.

Category:

People & Blogs

Tags:

• ms
• mutliple
• sclerosis
• blog
• teen

[KSTdancer]

I lost vision in my left eye as well, it was far more scary than any of the numbness or weakness for me. I never regained my vision so I only have partial vision in that eye. Thanks for sharing your story, it's similar to mine. Wishing you all the best!

[msmessnv]

We have very similar stories!

Thank you for sharing this with us. You have a great outlook on life and I appreciate you being so open. You have great things ahead in life, stay positive and keep strong. Please look into CCSVI and see what you think. If you would like some websites to see send me a message and I will send you links.

My best to you and your family,

Stephen

[jcrossfield04]

Thank you for your story. You are an amazing young woman. MS hit me quite awhile ago probably in grade 4 and I'm now 38. Have you heard of CCSVI? I have SPMS and have now had the angioplasticy and am getting better day by day. Is it a magic wand cure NO but it gives you hope to believe. Google it and do your own reseach.

Prayers to you and yours.

God bless,

Jennifer

[76copacabana]

you are one brave and couragous young girl, i had symptoms since a teen but brushed it off to being a type 1 diabetic since i was 10 - numbness, vision problems? i too went off the crab drugs.i thought i was having a stroke- i will never take any of that again!!! i have to agree with jane4ccsvi - LDN is brilliant - no side effects and it made me walk a little better before i got angioplasty for ccsvi - check it out ; ) and take care there are many of us out here for support : )

[lavmac56]

Thank you for your story, you are very articulate. Good for you hon. I have had MS for 32 years now since the age of 22. My sister has it also, She has had it I think around 28 years, You have lots of us for support. You are very smart and cute as you can be. Good luck and holler if you ever need anything.

[BrendaRaven1]

ty for sharing your story. All I got from 14 years of Rebif was a cyst on my thyroid so good for you quitting, I did finally too. I had symptoms since I was a teen, people just thought I was nuts or lazy. I wasn't dx'd until I was 35 and had two optic neuritus attacks just like you discribed. had a couple more, after that as well. Good for you getting out here to break the myth of teens and even kids not getting MS.

[donotconcede]

Hello! :) Thanks to MSVlogSupport I found your video. I was dx'd July 08 with relapsing remitting MS, i am 47. I just saw an MS specialist yesterday (which I will video blog about, after i clarify some questions). I went deaf in one ear, but steroids brought my hearing back. I am soon to undergo angioplasty for my ccsvi (i've been tested positive). You are extremely intelligent and well spoken. I appreciated your video much. I'm also video blogging about my own ms and ccsvi. best wishes

[mimoo4487]

thanks for sharing your story. i was dx may 09. and currently on rebif. thank you the information since im new to all of this. all i know is my life is not the same and i know it never will be again. but god gave me this for a reason and will accept that. by the way im 31 years old

[darlin4ful]

You are AWESOME!! Thank you for sharing your story, it is very important to get the word out there about young people having MS. Keep up the great work :-)

[damizia]

God Bless you too :)