8. Helping A Friend With ME (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome CFS)

Seven ideas how you could help a friend who has ME

You can read a transcript of what I've said, at http://www.getwellfromme.com

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[fatassassin123]

dude you guyssss i found out mine was from late stage lyme and im doing better so maybe you should look into ittt

[GetWellFromME]

@fatassassin123 Yes I am going to look into that too - but I've heard the testing isn't very accurate, and the treatment (antibiotics etc etc) is slow as well too?? But you're doing better now? Where would you say the best advice about checking out Lyme is please?

[GetWellFromME]

@ChibiYotsuba Oh that's really tough, sorry to hear that. Any point trying to claim for unfair dismissal because of sickness? Trouble is, the way ME is usually treated in this country, that wouldn't be easy, and would take a lot of energy itself. Look after yourself.

[ChibiYotsuba]

@ChibiYotsuba Well no need to talk to my jobcoach about it... I got fired due to lack of work for me recently. Time to find another job somehow...

[GetWellFromME]

@ChibiYotsuba That sounds like a really difficult situation, I'm very sorry to say that perhaps for the sake of your longer term health you may need to rest more than your current work is allowing you to. The pill can affect hormones in such a way to exacerbate ME and make it worse.

[ChibiYotsuba]

@GetWellFromME I realised I had to take my anticonception pill which is upstairs, so I just took very long getting upstairs. Took like 5 breaks on 1 stair of 14 steps...

At the moment, physically, I feel a bit better and can go to work again (5 hours a day), but I don't hope my work will keep taking this much from me. It's absolutely terrible to have to call in sick every time. If I do keep getting this tired, I'll have to talk to my jobcoach about it.

It's just an assistant job..

[fatassassin123]

@GetWellFromME well basically i would reccomend finding a LLMD in your area, ands yea the testing sucks mine was a clinical diagnosis, i never found a tick or rash. it takes a while to feel better, but between the antibiotics and vitamins and protein i am actually able to go to school and hang out with friends, i still have random bouts of fatigue but never as bad as before. if you send me the details of where youive in co0uld find some doctors around you...sorry for the huge reply lol

[GetWellFromME]

@ChibiYotsuba So sorry to hear you're so ill - I hope you have managed to get a good sleep somehow, somewhere :)

[ChibiYotsuba]

At the moment I'm laying on the couch wondering how to get to bed, 'cause I'm too tired to walk the stairs. Maybe I should sleep on the couch...? :'(

[GetWellFromME]

@pookiebear364 Thank you, really glad to hear it's helped just sharing my experiences too :) It can be such a lonely illness but hang in there, wishing you all the best :)