The Walk in Brick Twp, NJ, was amazing. The Stennis Foundation and Tomaino Children's Fund raised over $16,000, to partner with The Myelin Project to support research at San Raffaele Institute in Milan, Italy. At this walk, we honored Anthony, Matthew, and Laura Grace, and other leukodystrophy families in NJ.
*song is "We Are the World" by Michael Jackson and Friends.
I am running 1/2 marathon now for Crohn's and Colitis but I am a member of ULF. If there is any local event in San Diego,CA. for fundraising please contact me. I would love to raise money for cure for leukodystrophy. I care for two brothers with this condition.
joieboie1 2 years ago