Trisomy 13 - Patau Syndrome Survivors - Josiah's 10th birthday party

http://tinyurl.com/trisomy13archive http://www.trisomy13archive.com *300+ Trisomy 13 Family Stories, Pictures, Video ARCHIVE (2005-2010) January 2008 - Josiah and Natalia both have Full Trisomy 13 - "Patau Syndrome" - having an extra 13th Chromosome
Genetic abnormality in which there are three copies, instead of the normal two. (3 of the 13th= TRIsomy13)
*SOFT -Request a New Family Information Package http://www.trisomy.org/
*SHARE your LWT13 Story (2011- ) http://www.trisomy-13.com/blog.php
*Share Your Story URL on SOFT FAMILY's Album page http://www.trisomy.org/families
Blog Informational & Resource Links
http://trisomy13-patausyndrome.blogspot.com

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[ThereseAnnM]

NIEW Trisomy Advocacy Group - Trisomy HELP

trisomyhelp (dot) org

SOFT Support Organization for Trisomy 18, 13 and Related Disorders

25 years Supporting Families

trisomy (dot) org

[makmarinho123]

Olá! Parabéns pela linda criança. Parece-me que ambos tem a trissomia. O meu "bebe" vai fazer seis anos no dia 15/12. Fiquei muito feliz em ver este vídeo pois me dá muita esperança. Mas o meu não tem controle motora, ainda respira pela tráqueo e se alimenta por gastro. Então isso significa que nem todos os Pataus são iguais. Abraços e felicidades. Marcelo - São Paulo - Brasil.

[ThereseAnnM]

@makmarinho123 Please join the Spanish/Portuguese Speaking Group they could help offer you the most current Trisomy Family and Professional Support. One websites and Facebook. Go to the Trisomy13archive (dot) com site.. then go to the "Message Boards" You'll see a Yahoo Group Spanish board link there. Click and join.

[Ciofalo]

Think you!!!

[ThereseAnnM]

@Ciofalo you are welcome :)

[ThereseAnnM]

@Alicatl45 Yes they are... we really ought to take them there again... you can see they loved it :)

[ThereseAnnM]

@ThereseAnnM 2011: Just noticed as we are Archiving the Original lwt13 format (website) that this link is broken to Dr. Levey's quote, it must have been removed from the KKI website. To find the most current info on him * Google: Holoprosencephaly Dr. Eric Levey, Kennedy Krieger Institute

[ThereseAnnM]

@icepixycicle glad you found the Yahoo Group :)

[ThereseAnnM]

@icepixycicle Bottom line, you are able to prepare.... Please also contact NILMDTS a Complimentary Photography org You'll find their link off the Prenatal "Don't Miss" support links.

livingwithtrisomy13 (dot) org/content (dot) php/203

[ThereseAnnM]

@icepixycicle ..(from cont.) Most of the families that see me come because they want treatment. They want to do the most that they can, whatever that most is. I try to help those that choose to go ahead with the pregnancy or those who did not have a prenatal diagnosis.”

Dr. Eric Levey, Kennedy Krieger Institute