Tysabri & CCSVI - My thoughts and my experiences March 2010

In this video I mention the latest cases of Tysabri (we are up to 42 cases and 9 deaths caused by PML) and I talk about CCSVI and the Liberation procedure that is being done at Georgetown University Hospital in Washington DC. Things are not moving fast enough, but they are moving and I think that its important to keep hopeful and to keep informed.

While Tysabri is helping me move better, I can say that my cognition is not improving at all and I continue to have cognitive issues. I do believe that the combination of Tysabri, the high dose of Vitamin D and the cranial sacral therapy that I do every two weeks is the right combination of therapies for me at the moment.
I do dream of the day when I won't have to take Tysabri any more and I will be able to get the Liberation treatment!

If you would like information about the Liberation procedure, please visit the following sites:

http://www.facebook.com/pages/Flowers4MS/154192398822?ref=ts

http://www.facebook.com/pages/CCSVI-in-Multiple-Sclerosis/110796282297

http://www.fondazionehilarescere.org/eng/index.html

Category:

People & Blogs

Tags:

• CCSVI
• Tysabri
• PML

[Jessica1963Forester]

A universal benefit reported by every patient has been the recovery of bladder control. Most MS patients have various bladder control symptoms that include urinary urgency, incontinence, nocturia, or urinary hesitancy as a result of the disruption of electrical impulses from the brain to the nerves and muscles that are involved in emptying the bladder (pudenal nerve, urethral sphincter, detrusor muscle). Log on to ccsviclinic. ca for more information.

[angelusa73]

@Jessica1963Forester I have been lucky with this symptom, I guees because PML made me incontinent bu then, after months of dealing with it without taking other aweful drugs, the problem resolved by itself and now I am okthat way. I am glad that every patient reported better results and got better this way. This is good news, thank you for sharing them with us,

hugs,

Angela

[catimini34]

Hi, thanks for sharing your own experience with us !

I live in France ... 41 years old, have MS since my childhood ! but only recognised by the doctors in 2007 !!!

[angelusa73]

@catimini34 Dear Crystele,

MS is such a mysterious disease and it is so hard to diagnose it at times! In my case, it was very easy and quick but I have heard that so many people had the disease but they never got a diagnoses until so much time later on in life, just like it happened to you.

Please, watch the other videos where I mention CCSVI and Dr. Zamboni's discovery and learn more about it. CCSVI is bringing so much hope to MS patients all over the world!

Take good care!

Bises,

Angela

[33rojrsr]

Having my son six months ago dx with ms,in those early days a letter you wrote to my son wasn't only hopeful l for him but for my family, thanks for al your kindness,

I don't have enough words to express my gratitude to you and all those doing the effort to spread ccsvi findings, keep going ms family !

Rick dad 4 ms folks & son.

[angelusa73]

@33rojrsr Dear Rick,

thank you for writing to me and for being so kind! It comes easy for me to open my heart to others and I love sharing hope with people that I meet in many ways. My heart, my prayers and my thoughts are with you, your son and your entire family. Please, count on me for anything! I am here for you all! :)

warm hugs

Angela

[angelusa73]

@Jessica1963Forester thank you. I didn't have the time or the strengh to look for this type of information and I wasn't aware about it so thank you fo sharing this with me and withe the many patients that are affected by this horrible disease. Thank you again and take goo care,

hugs

Angela

[Jessica1963Forester]

Dr. Hemangi of Noble continues: “These are early days and certainly all evidence that the combination of liberation and stem cell therapies working together at this point is anecdotal. However I am not aware of other medical facilities in the world that offer the synthesis of both to MS patients on an approved basis and it is indeed a rare opportunity for MS patients to take advantage of a treatment that is quite possibly unique in the world”. Log on to ccsviclinic. ca for more information.

[Jessica1963Forester]

Other recent MS patients who have had Autologous Stem Cell Transplantation (ASCT), or stem cell therapy have posted videos and comments on YouTube v=jFQr2eqm3Cg. Log on to ccsviclinic. ca for more information.

[Jessica1963Forester]

A group of Canadian patients just back from Noble have reported similar results. “I can actually see what I thought were long-dead muscles forming in my feet” said Larry Vermeersch of Kenora, Ontario. “My balance is back and I’m walking without a cane. I’m a pretty hard guy to convince, but getting these two procedures together has made me a believer. I’m looking forward to the physio ahead because I can feel everything coming back.” Log on to ccsviclinic. ca for more information.