Chronically Hopeful: [Endoscopic Sinus Surgery + POTS]

Thanks so much for all of your thoughts & prayers! It meant so much to me! (hugs)

XOXO,Kyli

Category:

People & Blogs

Tags:

• endoscopic sinus surgery
• sinusitis
• dysautonomia
• anesthesia
• chronic illness

[hiphopqueen265]

gosh kyli, i love you <3

when you started talking about the pain that you were in and how you were finding little things to laugh about, and you looked so happy with that hamburger, i smiled. Living with POTS is no fun, and i too am always smiling and laughing, and taking everything in. Life is too short to be miserable. I admire your strength and love for life. feel better soon! xoxo <3

p.s. I lay in the car like that all the time! ;)

[chronicallykyli]

Gracie, so glad my video made you smile. Thank you so much for the kind words. (hugs, hugs, hugs) You're right...life is too short to be miserable. Lately I'm pretty miserable though, lol...but I always realize sooner or later that it only makes things worse. There's so much in life to be grateful for, always. Hope you're feeling great!! Ttys.

[poetrygal1]

Hi!!! I am glad you are recovering! I pray you will get complete relief :) :) :)

I had an upper endoscopic GI and they only used propohly(spelling?) but it sent me into autonomic crisis eight hours later, so it was not fun :( I have never had general anesthesia-thank goodness!!!((BTW-Sonic Burgers are the best- LOL!!))

[chronicallykyli]

Really! Sonic? I don't know if I can go that far down the junk food path but someday I might have to try them ...!! I'm working my way back to fast food at this rate LOL.

[sm111165]

hi everyone you asked for surgery comments. I had surgery before I was rx'd with POTS. I am sharing my experience in the hope that my story wll help others... I had a procedure that was meant to be a out patient surgery. Instead what occured was while i was under general my blood pressure droped to a dangerous level. I did not wake up from my suregery till 12 hours later and my Dr. anesthesiologist was holding my hand calling out my name to me with a very sheet white nervous look on his face

[nonebutourselves]

Love it! Brain fog delirium can be hilarious if you can laugh at yourself and just go with it. Sorry your recovery was so rough though. I was totally there too for a few weeks after I had sinus surgery. I ended up exhausted, only healing half as fast as my ENT said I should, and feeling super hopeless. Totally worth it in the end though. Yay for normal people headaches and sleeping through the night!

[ikesworld24]

And by the way i'll be 24 on valentines day 2011 and I think jersey shore makes me feel funny

[ikesworld24]

And u should find me on the facebook P.o.t.s pals ??? lol

[ikesworld24]

Hey my names Mike from Cleveland Oh area and I have a surgery coming up next week for a deviated septum to be corrected and I have to get anastegia. You and your video were fun to watch, and helpful ,I'm glad someone posted something about it I have p.o.t.s 2 , I have to like lay down in the car as well haha! you are funny , so I am like in love with you and we both have p.o.t.s so it could never work because like doesn't one of us have to be functionable lol

[Palaecro]

That's amazing you had the surgery. How many ENT visits did you have before they let you apply for it? I've got a bad chronic fungal infection in there, I'm sure.

In the past few years I've been getting strange heart pains, panic attacks, sudden low blood pressure etc. I've read about POTS I'm curious how you got diagnosed. In Canada its next to impossible to get any help from the doctors.

They did EKGs which said I'm fine when I've had to suddenly go to the ER, how did they detect yours?

[24ducks99pigs]

Oh wow POTS must really make you extremely tired, that must be so tiring. I mean, to be that exausted all the time, man that's s tough. Hope you get well. Best of luck.

[Heatherstl1]

Kyli, I'm really glad your surgery went as well as it did. I wanted to let you know that I too have found that the less sleep I get, the better I feel (but gotta have that afternoon nap!). Also, I have ridden in a car many times just as you did...w/my head even between the front seats and my feet on roof! It is the only way if the seat will not recline.

Have a great Christmas!

Heather, St. Louis

p.s. I've begun Mg IV's and it's made such a difference. Also O2 therapy due to hypoxia is great.

[DYSAUTONOMIAGIRL]

I was fourced to lay like that before in my friends car on the way to NJ!!! AH!