My Chiari Malformation Story

I like the words apparently and proceeded...I had no idea.

To learn more about chiari or help in anyway go to www.conquerchiari.com

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People & Blogs

Tags:

• chiari
• malformation
• type

[TheFakeGhost]

Hope your doing well! I have a question! Do you still have that pressure like feeling in your head after the surgeries? And, are your ears still ringing? And if yes, as they as loud or louder than before? Please help, please answer, thx

[Jennaration09]

@TheFakeGhost

I never had a pressure like feeling really - neither before or after the surgery. I had some migraines with pressure a month after the surgery but it was underneath my eyes.

As for the ringing in my ears, I never had that in the beginning. After the surgery and all, I have a very high pitch noise that happens and then I will go deaf in my ear and just hear the high pitch tone. It will only last for 15-20 seconds though. I have had one last for a minute+ though.

Hope that helps?

[JumboSquid]

I have this severe headache when bending. Or sometimes when turning my head left. The pain is between my left ear and my back neck. Very painful as if my head will explode. Do you think i have "Chiari Malformation"?

[Jennaration09]

@JumboSquid

I have no idea. All I will tell you is this, I am no doctor, so go see one. :)

Find a neurologist, when you see them, tell them your symptoms and you'll go from there. (They will probably get you to get an MRI or CT scan.)

[sweetlemon2010]

what discomforts did you experience? i have a son who has chiari malformation 2. he's 2 months old when he underwent VSP insertion. i just want to know what am i going to expect as he grows older. he's 10 months old now and healthy. he still has meninggocele at the lumbar part.

[Jennaration09]

@sweetlemon2010

I am so sorry it took me so long to reply - first off.

Secondly, some symptoms I had before the surgery was back pain (pain fluctuates) and headaches. Then again he may have more or less symptoms then me. I have had trouble most of my life with finding a comfortable backpack. Rolling ones, side straps, or good old fashioned double straps. Chairs never seemed comfortable enough in school.

I had seizures after my surgery. I take a daily medication for it. Works fine. :)

[dankk31]

sweetie reply, my girlfriend had chiri, i know how to fix and know what needs to be done.. no joke, she had like 8+ sugreys.. spelling

[chrisbrown18andup]

I went to weinguard!

[SCAREDBANANA]

I have the type 1, and I am getting in to surgery hopefully in a couple of months. I really hope that it will help.

[IrishHerbsnSpices]

i have this condition too, i just learned i have it and i wanted to know if i can drink/smoke weed while on it? i know i probably sound stupid but i'd really llike to know if you know

[SarahDawn1987]

@foxleyleon I experienced all of those with mine. The first thing I noticed when I woke up and started drinking fluids was that I could swallow like normal again!

[ashlyissiik]

thank you for telling your story. I am a 42 year old female who came down with a constant headache in august of 2009. The local doctors kept telling me it was a migraine. 4 months later I was diagnosed with having Chiari 1. It has been a year and a half since the Doctors said that i needed the decompression surgery. I have no medical insurance to get it and the Hospitals say that they won't do it because its not terminal. So where does a person like me go for help??? Anybody got any ideas.