Fallyn McNamara, a 2nd grader from Pennsylvania, was born with recessive dystrophic epidermolysis bullosa (or RDEB). Her skin is incredibly delicate- prone to blisters, and can fall of at the slightest touch. But, there is hope- Fallyn is currently part of clinical trial that will hopefully provide a cure. This moving video tells her story- for more information, visit her website at www.HelpFallyn.org.
I hope she does well with the surgery and that after she can eat pizza!!!
coldbeverages11 2 years ago