4 Questions

1. Will you change your current medication if one of the new oral medications becomes available?
2. Has your hygiene taken a turn for the worst?
3. Do you follow a special diet, take supplements or LDN ?
4. How do you know if you are progressing?

Category:

People & Blogs

Tags:

• Multiple
• Sclerosis
• MS
• Tysabri
• Avonex
• rebif
• Copaxone
• progressing
• disease
• course
• LDN
• Low
• Dose
• naltrexone
• Vitamins
• supplements

[lovingfatalist]

1) I'll take whatever the NHS prescribes; 2) My hygiene was always terrible anyway; 3) Lots of greens and fibre, with no red meat; 4) I really have no idea, sorry! T x

[MSVlogSupport]

The no red meat is what would be so hard for me. I love me some beef!

[Sage95351]

My neuro thought something (dmd) was better than nothing. I beg to differ. I stopped having relapses for a few years but had significant progression. However I had two relapses withing 3 weeks of each other this fall. Before MS I never had a conversation about my hygiene. MS just tosses pride right out the window. I take an Omega 3 supplement, Calcium with D. I use to also take evening primrose oil and flax seed oil caps. But I can't afford it all anymore.

[MSVlogSupport]

The cost of everything is so expensive. Eating health can make you go bankrupt.

The progression thing is what I am really wondering about. Someone told be that if I were moving into SPMS that my mri's would not show new lesions but I would just be getting worse.

Not sure if I expanied it right, but since I don't know if I have new lesions on my spine or if they are just flaring up and not a real relapse.

Plus no improvement since the relapse.

[floydini13]

Thanks for the vlog Andrea! I have to split my excessively long comment up.

[MSVlogSupport]

Get a WEBCAM!!! LOL

[2010ironside]

@MSVlogSupport - me ppms and just started on LDN 1ml 1st x week 1.5ml 2nd week 2ml 3rd week plus vit d, magnesium, omega. hygiene body wash at the basin. LDN read the web and speak to your health care person. good luck

[Alexknobsob]

God bless you. Really.

[sandywatts500]

Hi Andrea. I posted a vid response. When it finally comes thru, I apologize for the video/audio delay! I don't know what the problem was.

Thanks

Sandy

[vbeachy]

Hi Andrea;

I posted a video response, but I cannot link it here right now (I think YouTube is having issues tonight).

[WithCourage2008]

Hopefully, Obama's Health Insurance Reform will help you!! :)

[MSVlogSupport]

The drug sudty I am in is for one of the new oral meds and is a phase 3 study. I don't think it will be out for about 3 years One of the reasons I am trying to stick it out with the Avonex is that after the 2 years I will be able to have the real pill for 1 year as a follow up study.

Not having inruance has made my choices difficult.

[enfermera72]

Sure! Let me type it up and figure out a way to post a link to it or put it on a PDF file. It may take me a day to do it, but I will post it. :)