Fight for Owen
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Uploaded by Fight4Owen on May 13, 2008
Owen is two months old and was diagnosed with Spinal Muscular Atrophy ("SMA") Type I (also known as Werdnig-Hoffman Disease) on May 5, 2008. This is the most severe form of SMA. SMA is a rare genetically inherited neuromuscular disease characterized by gradual muscle weakness due to loss of motor neurons of the brainstem and spinal cord. There is no treatment and there is no cure. The lifespan of those affected by Type 1 SMA is only 1-2 years.
Owen's parents, Dorothy and Jon and all of their extended family and friends were heartbroken when they received the devastating news.
This video was made with love by Owen's Mama.
Owen, my heart & soul.
xoxo Mama
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owen i have seen many videos about you and i know ms lundie ur aunt R.I.P
bfornasari20 2 years ago
hi my name is terry and im from the uk and i have sma type 3 i wourld like to say that sma is bad and about ther goverment and the other big powers that thay dont give a shit about us sma disease kids and adults thay have the cure but wont give it the only way is 2 billion for ther pockits
tex11111 2 years ago
I have sma although type 2. i am 12 years old. keep going owen!
Caden
ItachiKenobi 2 years ago
you have the most beautiful baby i have ever seen. god bless.
philaboston 3 years ago
I know this is strange, since this is an old upload and we've never met, but I just wanted to say that this is a beautiful video. There are 4, 204 people who will now remember Owen, and who have learned about SMA, thanks to your family.
airavanya 3 years ago
We can't make it to the wake tonight, but we are watching this to remember Owen. Our thoughts are with you. Much love to you, the Chicago Parkers
fergieparker 3 years ago
Jeremiah 29:11 For I know the plans I have for you declares the Lord, plans to prosper you and not to harm you; plans to give you hope and a future.
JETLEYJAMES 3 years ago
Hey Jr.-wanna have a catch? I wub you guys!! Love, Aunt Moe.
tigeom 3 years ago
Owen - You are in my thoughts every minute of every day. I love you!!! Hugs-n-Kisses, Aunt Kerri (your favorite aunt, don't worry I won't tell Moe & Ally)
klalessi 3 years ago