Lyme Disease/CFIDS/ME and My Life Part Two
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Uploader Comments (Carrigon)
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Hey there, I just posted a reply to you on my recent video, so check it out. By the way, I love your "jail scene" in your video. Ain't it the truth!!!!!! Hugs! Suzanne
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Carrigon you are in our prayers. I will pray for you every night I hope you get better.
-Winter
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thank you for sharing. im sick to so I can't wright alot just wanted to say thanks :)
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Me, too. And it's something I didn't get to talk about in the vids. The sensory overload nearly kills me. It's yet another reason I stay away from people and going out too much. A movie theater would probably kill me. I can't take alot of noise and light and too many things going on.
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Thanks for sharing your story. I sympathize with you. People that don't have Lyme really don't get it. The documentary : UNDER OUR SKIN is one of the best communication tools out there. If you can order this DVD, it would be well worth it. Invite your friends and relatives over to view it with you. Wrote a Lyme disease brochure with the help of 2 Lyme specialists. Will email to anyone. One Lyme doctor that was kind enough to review my brochure is in the film: Under Our Skin.
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I know exactly what you mean. The problem is,. everyone around me doesn't understand, and so therefore they keep thinking that I am just being crazy in the head, lazy, hypochondriac, or melodramatic. Daily life is a real challenge with this.
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Clindamyacin worked for me for three years before it stopped working. Ketek worked for a year but is no longer available. Alpha lipoic acid and zinc, seperately, works well for me during flares. Still, I have been out of a job for a year. I got rid of my night sweats with famciclovir. I am going to try Valcyte soon. I got bit by a tic bite 5 years ago and my symptoms have escalated since then. I used to be so healthy.
Holypikeman 2 years ago
I think we can't get well because it's not just Lyme. Ticks carry a whole soup full of pathogens.
Carrigon 2 years ago
I can relate to how you feel. I have Fibromyalgia and CFIDS.
Thanks for posting the videos. Its nice to know I'm not alone with the symptoms. The way you described your illness, symptoms, the way it affects your life...that's exactly how I feel.
I was tested for Lyme, and my test was negative. Sometimes I wonder if the test was wrong because I know I was bit by a tic when I was a child.
stac1126 2 years ago 2
The Lyme tests are not accurate. Mine was borderline, meaning I was exposed but wasn't showing active infection in the test. But I definitely had the tick bites and the rash and I'm a hundred percent disabled from it.
Carrigon 2 years ago