CFS/ME CFIDS Fibro Misinformation RANT Part One

Talking about all the misinformation out there about CFS/ME CFIDS Fibro Chronic Fatigue Syndrome and the damage the misinformation causes us.

Category:

People & Blogs

Tags:

• CFS/ME
• CFIDS
• Myalgic
• Chronic Fatigue
• Fibro
• Fibromyalgia
• Misinformation
• Coverup

[ruthamyallan1]

Hi Carrigon from a fellow sufferer in the UK. Totally relate... Noticed you like a video with Dr Stan Monteith and Betty Martini - did you hear one of his recent shows on Radio Liberty with an ME expert who's asking for volunteers on a supplements study? Can't remember his name though. Dr Stan himself has a son with the disease so he has quite a few shows about it.

Solidarity, sister, Ruth

[Carrigon]

@ruthamyallan1 Hi, I hadn't heard of that, but, I spent alot of time consulting with Betty, and she has convinced me that we are primarily suffering from aspartame poisoning. It was the aspartame that did this to us. It puts a pinprick sized tumor on your pituitary gland and messed up your entire body. And then it puts cracks in the blood brain barrier so retroviruses like XMRV can get into your brain. Without the aspartame, we probably wouldn't be sick at all.

[Carrigon]

@ruthamyallan1 I was going to do a video about it, but right now, things are just too full here. I moved in real life and the move has like almost killed me. But if you spend time at Betty's website and write to her, she will show you what she showed me. We were poisoned.  And since they hide it in alot of things, we continue to be so.

[deadgirldreaming]

You say 25 years?

It was classified as a neurological disorder by the WHO in 1969. There is data on an outbreak from 1934 and it has probably been around hundreds of years under different names.

I've had it since 1996. Was bedridden in dark, noiseless room for the first few and still up up back there if I try to do too much.

It's hell.

[Carrigon]

@deadgirldreaming There have been outbreaks of something similar on record since the late 1880's. We just don't know if it is the exact same disease, and if so, why did it suddenly become epidemic a hundred years later and rise concurrently with the AIDS epidemic.

[Suzanne42]

.......it's hard for us to ever stand a chance when the NAME is wrong. That's where all of the misinformation starts. A true shame.

[Carrigon]

They killed us with the name. And the refusal for all these years to change it to anything that sounds serious. Even Chronic EBV sounded better.  Anything but what they did.

[ruthamyallan1]

@Carrigon Oh OK, that would make sense that it's hidden in a lot of things. Because I was eating (I thought) pretty healthily when I got it, though I was compromising my health in other ways, partying. Seems like a long time ago now! My idea of partying now is lying in the garden in my hammock with a cup of tea and watching our pet rabbits cavorting about. Yeah moving house is hell. I first noticed symptoms in 1989. Full blown by 1993. What about you?

[ruthamyallan1]

@Carrigon Wow - hadn't heard that one. The institute conducting the research I mentioned is called Envita.

[MsSoSher]

@Suzanne42