Fibromyalgia Suicide, I wonder how many?

Response to A letter that made me cry. We are isolated in our pain and told we are crazy. we should get together
and demand answers! Why is this Disease getting worse?
Send me letters and we can share what has worked or not.

Category:

Nonprofits & Activism

Tags:

• what drs don't tell you
• fibromyalgia
• pain
• mcertonio

[TheJohnlennongirl]

Also, I am sick and tired of so called friends telling me there is nothing wrong with me most of the time. At least I know who my TRUE FRIENDS are. Bless my TRUE FRIENDS and you all know who you are gang. :)

[mcertonio]

@TheJohnlennongirl -- Do not let ANYONE hurt you

In any way! If you need pain pills Find another DR.

I know it is difficult to educate DR's each time you

Need one. KEEP TRYING & F@#% Everyone Else!

[dawntenor]

There are no rheumetologists that will see me because I have fibromyalgia. They say they don't treat that disease. If our government has our way taking away our pain meds I fear there will be a mass suicide of us that are trying to live with this kind of pain. I am so sorry sweetie, everything you say is like looking in a mirror.

[mcertonio]

@dawntenor RHEUMS,see inflammation, We have A problem

With our systems fighting pain signals. Go to A pain specialist.

until there is A cure, There is poisen from Lyrica etc.

[bluesbrrd]

You know, some doctors are just arrogant assholes. Because so little is understood about fibro, there really isn't much they can do to help you, so they cop an attitude because of their own fear and helplessness, because they cannot "fix" you, and as a result you will become disappointed with them, and frustrated, so they try to kick you out right at the get-go.These doctors have zero compassion. There are good doctors out there - I have a great rheumy. No attitude, but empathy? Key question.

[mcertonio]

@bluesbrrd RHEUMY-- Do not get It! FM is not An Innflamattion Sick.

It is A brai Vs muscles disease.

[aleciajeanne]

Im so sorry with how bad your fms is, im 23 and im still able to do things, you are so strong that you still try to get up and do things.im scared, thinking that later ontinueon in life my fms is going to get worse.they try to say its non progressive, yet fms is progressive, because our pain gets worse, our symptoms get worse.im going to continue looking at your videos,stay strong

[colbysvids]

I am in constant pain and severe symptoms from Lyme disease. Is fibromyalgia caused from Lyme disease? could people suffering from Fibromyalgia really have Lyme disease? It is a very common and fast growing disease.

[fibromyalgiarelief1]

Fibromyalgia is indeed connected with stress and electromagnetic fields exposure could be a contributor.

[BrokenMan73]

I have fibro to and it feals like a constant battle between my simtums my sanity and liveing a normal life. It caust me my marrage my carreer my friends, except my close friends. But. I know there are good things I have relearned to enjoy in life.

[theyspar]

Also, to all of the fibromyalgia patients that are bitter towards medical proffessionals, please remember you are only hurting yourself. Literally, all that negativity is only increasing your symptoms, and so what if the doctor didn't diagnose you properly, whatever. Chances are you'd be in exactly the same place you are anyway. I say this with love to you fellow sufferers. Don't give us a whiny name :) we are strong

[theyspar]

@spbrendasp that's funny, I had ankle knee and back pain from very young as well, and doctors told me exactly that, growing pains. I'm now 20 and just finding out that I have fibro.

[windbeamproductions]

I am so worn out with this pain and the useless state it puts me in. I'm also worn out with having what little of my mind I had taken from me with fibro fog. I don't dare leave my room because I'm afraid of how grouchy I'll be to everyone. It's so hard to control. Words and attitudes are out there before I know it. I'm sick of being useless! I'm sick of just sitting here eaten up with the pain!

[FaithInspiredWriter]

In 3/08, I was diagnosed with fibromyalgia. After doc prescribed Cymbalta, I began to encounter severe symptoms of anxiety, irritability, insomnia, worse brain fog & depression. I begged my FMS specialist to taper me off Cymbalta. She refused & she "dismissed" me as her patient. For 2 yrs, I went from bad to SEVERE, docs NEVER listen, I was living in Cymbalta HELL! Mixing Cymbalta with Cipro & Ativan was the WORST choice the docs made. It led to a drug overdose. Thank God I lived!