This is our tribute to Heather Grace Coleman, our amazing little girl who, despite terminal illness, taught us how to LIVE! Heather had Mitochondrial Myopathy, A genetic disease that prevented her cells from using energy properly. One week before her third birthday, she earned her wings and flew to Heaven. You were briefly in our arms, but forever in our hearts.
"Let the children come to Me, and do not hinder them, for to such belongs the Kingdom of God." Luke 18:16
please go to www.mitoaction.org and www.umdf.org to learn more about mitochondrial disease.
(RIAA/WMG, read the disclaimer at the beginning.)
Note: Heather's brother Nicholas has a blog at "theworldaccordingtomooble.blogspot.com
What a sweet heart!! Thanks for sharing this.. I have a grand daughter that is almost five and she is very small and get tired really easy. She was diagnosed with Mitochondrial Myopathy about two years ago. We are doing all we can do to help her get everything she needs. We have set up a foundation page for her. Your Heather was precious and still is in the sight of God.. Your Heather gave enough smiles to fill a huge space and what a refreshing thing that is. Thanks so much for sharing.
dlnhill55 9 months ago
Thank you so much for sharing this video. She was so beautiful. I'm a medical student and seeing your video makes me want to learn more about this disease and how to care for the kids who have it. All the best to you and your family.
chipsahuey 1 year ago
i love heather. she was the best sister that i could ever have. poor girl :) too bad she had to die from mito.:(
katie2fi1 1 year ago
@springmausi soryy I wish her the best no where she is... Rest in peace! Sorry i wrote the message before seeing th whole video.
springmausi 1 year ago
such a beautiful girl and so much to struggle with. I know what*s mitochondiral myopathy.. My docs think that I have it too... i am 26 now. It is sometimes hard to cope with but Life is wonderful and there are so many things to do. I wish you the best heather!
springmausi 1 year ago