Cystic Fibrosis Foundation Video Podcast: Frank Deford

The Cystic Fibrosis Foundation video podcasts present the stories of CF patients, families and volunteers. Frank Deford, sports commenter, noted author of "Alex: The Life of a Child" and CFF Chairman Emeritus, recalls how he came to realize his daughter Alex, who died of CF at age 8, was a true hero.

Category:

People & Blogs

Tags:

• Cystic
• Fibrosis
• Foundation
• CF
• CFF
• video
• podcast
• Frank
• Deford
• Alex
• disease
• care
• heros
• Gloria
• Steinem
• books

[crazyboxingfan]

I coach a "hero" on a youth soccer team who is 10 years old. I'm going to raise $1,000,000 in 2008 to donate to the CF Foundation. We must continue to help fund the research to find a cure. So much emphasis is on the Cystic Fibrosis itself. While I understand this, I want to put the focus on the cure. With the focus there...the cure will be found. It already exists, we just haven't found it yet!

[littlevolcano]

So sad that Alex couldn't have been born a little later so that she would have had the new medical advances. Mr. Deford's book is one i've carried with me for years. I'll never forget Alex or her strength and grace. Thanks for sharing her story with us!

[rollo131]

I know a guy who's about 37 with cystic fibrosis and shows no signs whatsoever of ill health. Obviously there's been great progress fighting this disease

[yanners1976]

i understand your pain and agony mr deford. I also Had 3 children with cf.One died at birth(miranda),one daughter died with this disease at 2.5 years(kimberley),and Kristin died at 15 years old.Not a day goes by,that i dont think of all of them,and miss them.I have ur book and the movie.God Bless u.

[enchantress7]

I watched this movie when I was a little girl on television back in the 80's. I can't tell you how much this movie touched my life. I read the book as well. I feel very connected to this disease and foundation thru Alex!! Thank you for sharing your story

[Kiraskye1128]

i have the book and a long time ago i saw a movie based on Alex's life. Alex's story realy got to me.

[MeBenHalpin]

@Graffitti74 When did the film air, i would be interested to see it, sounded very tragic.

[MeBenHalpin]

I heard there was film based on these events couple of years after poor little Alex died, does anyone have it to upload please, as i would like to learn more about what happened.

[MeBenHalpin]

This was very sad story, can't imagine what this poor man went through.

[oscare76]

Mr, Frank deford is gret to see you and see this kind of video on you tube, i contacted you like 5 years ago when i sent you a email from mexico telling you how the alex´s movie caused in my person, and i have to say you again how alex impact me when she was a little and try to figh against that sickness , the stronge about alex, the movie make me cry really i send you a hello from mexico city.