Who Am I?

Although I have a chronic illness, I am so much more than that. This video will give you some insight to who I am and who I was before I got sick.

It's always tough to try to describe yourself so I tried to just include some of my most memorable moments and the things that have had the biggest impact on my life.

Anyway, I hope it doesn't bore you too much - my next video will be about POTS, the medical aspects as well as what life is like with it. I am SOOO excited that I have this wonderful opportunity to spread awareness about an illness that is so painfully invisible.

Thank you!! & I hope to talk with all of you!

XOXO, Kyli

PS- I'm sorry about the quality - if anyone can tell me why it ends up being so blurry when I upload, I'd appreciate it! :)

Category:

People & Blogs

Tags:

• dysautonomia
• pots
• postural
• orthostatic
• tachycardia
• intolerance
• chronic
• illness
• invisible
• faint

[lauranne2585]

My friend Zabrina told me about your videos and I am so glad she did. You are such an inspiration! I am sitting here, with my own chronic illnesses (autoimmune inflammatory disorders, RA, endometriosis, etc) and seeing you and hearing you speak like this..I dont feel so alone! I am thinking of doing videos myself-yours are beautiful, you are so talented! Thank you for doing this.

[TheDarksEmpyrean]

that was really a great video. God Bless You.

[MiraculousMoments]

Kyli, this video is beautiful. It really makes me see how beautiful life is and not to take a single moment for granted - even though it's very hard and I need to get better at appreciating every moment.

Any tips?

This reminds me of 2007, when I had to get my spine fuzed and have rods put in because of scoliosis. I mean, I'm in a wheelchair, but I never realized how much of an impact that single operation would have on me...

Thank you for opening my eyes! :) <3

[DrFrankyDolan]

Incredible Kyli!

I can relate to you more than you know. Your videos have sincerely inspired me as well. You are one gorgeous soul!

sending love...

[EBELLO4]

hello ....... my beautiful 29 yrd old daughter, has been diagnosed with pots in the last 4 months.. shes having a hard time dealing with it and I dont know how to help her... would you be able to call her? were in arizona and my number is 623 670 8480.. my name is veronica her name is viviana..thank you Kyli

[spendleton69]

Kyli,

Hi, my name is Shawna and too have pots. The drs think I had my whole life, it come on full bore in 2005 after a major illness. My life has not been the same since. Love to talk to someone who understands what i'm dealing with. Hang in there.

[matteahmb]

Kyli, I have pots as well and I am also a photographer.  I would love to exchange stories/photography tips with you.

[crobin1214]

Kyli, Your video is beautiful. My daughter, Kelsey, 15, has dysautonomia and there is a lot that we can relate to. Looking forward to the one on POTS.