Bonnie Hancock Peterson

This video was taken in April 2003 at the funeral reception of my mothers brother, Wilford Merwin Biggs. Bonnie is talking about Hereditary Hemorrhagic Telangiectasia (HHT) It is a genetic disorder of the blood vessels, which affects approximately 1 in 5,000 people. It affects males and females from all racial and ethnic groups. The disorder is also sometimes referred to as Osler-Weber-Rendu (OWR) after several doctors who studied HHT about 100 years ago. In 1896 Dr. Rendu first described HHT as a hereditary disorder involving nosebleeds and characteristic red spots that was distinctly different from hemophilia.

Category:

People & Blogs

Tags:

• HHT
• Hereditary
• Hemorrhagic
• Telangiectasia

[scotty2haughty]

It isn't scary because it is very easy to treat. go to hht.org and the more you understand how to live with it, the less scary it is.

[austinnou881]

I have this disease also. I get Nosebleeds from it.

[mesosalphinx]

hello.. i wana more bot this disease..

[bisattichirurgia]

Don't be scared for HHT!

We can live happy anyway!

I had cerebral stroke and lung's operation but I still believe I have time to complete my path (whatever it could be;)

[suunton3i]

same here

its getting more common these dayz

my dad , grandma have it

nose bleeding being the most common

and AVMs anywhere in the body!

[inoodlezombie]

I have this genetic disorder.

It's kind of scary.