Faces Of Trisomy
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Uploaded by jfwolpert on Mar 4, 2010
March is Trisomy Awareness month. I photographed this series of portraits at the SOFT (Support for Families with Trisomy 18, 13 and Related Disorders) conference in Roanoke, Virginia during July 2009. I am trying to raise awareness that while only 10% of these kids survive their first year the ones that do live a rich life. Expectant parents are often told that Trisomy is incompatible with life and I am trying to share their unique beauty through these digital images. These children and young adults do not pose for photographs but can be captured being themselves, living in the moment. Most are non-verbal so I see it as an honor to help tell their stories visually.
49 videosYouTube Mix for Sarah McLachlan- 14:53
Life with Trisomy 18 Nolanby bestrongnmbr23,304 views
- 8:52
Sindrome de Patau.Trissomia 13 (parte2).wmvby MissCartageno5,123 views
- 7:09
Lane's Trisomy 18 Journey from birth to 20 months old.by alihauber2,701 views
- 4:10
R.I.P Sophieby GerardWayLuver4eve602,377 views
- 1:02
Juliana Wetmoreby TheNi4e917,014 views
- 5:00
Mieko at school, Trisomy 18by trisomyvoices14,632 views
- 1:12
Trisomy 13 - Patau Syndrome Survivors - Josiah's 10th birthday partyby ThereseAnnM18,958 views
- 5:08
Isabella's Goodbyeby IsabellaHopeTitus175,838 views
- 4:37
Angel Maladie Lynn 5/21/08-5/21/08by mamichristie60,580 views
- 0:38
Trisomy 13 (Patau Syndrome) Long Term Survivor Livingby ThereseAnnM9,762 views
- 4:46
Trisomy 18 - Rafael IIIby bbsniper0424,576 views
- 0:49
vilkethållby jonnypampan2,215,755 views
- 4:51
My Daughter..born with Down Syndromeby erinsworld4025,812 views
- 3:48
Lane @ 29 months w/ Full Trisomy 18 is now able to pull himself up into a crawl positionby alihauber20,054 views
- 1:21
Trisomy 18 - Rebekah Standingby buddzoo8,688 views
- 0:44
SJ Ultras v Clockwork Orangeby adonis081761 views
- 3:50
trisomy 13by insanemogirl13,328 views
- 5:17
Our Daughter Lilly 1/10/08by lillillybug58,769 views
- 5:00
Patau Syndrome Trisomy 13 Survivor - Livingby ThereseAnnM6,830 views
- 12:24
Juliana Wetmore a Film TV video part 2/4by lauurentiu84cris619,176 views
father of Alisa whose now 14 mos & diagnosed w/trisomy 8 mosiac in addition to complete/full agenesis of the corpus callosm. She's doing quite well as a remain proactive making sure she receives weekly P/T & O/T appts. Wonderful UTube channel you've put up....awarness is so important & it seems to me that in the last 12 mos or so there's been more & more info that can be found online about this specific area of cognetive development. Peace & much strength to all.
RRRBME 13 hours ago
@annavicki68 humans typically are born with a pair each of 23 chromosomes. individuals with a trisomy have a triplet chromosome, the number refers to which specific chromosome is duplicated. for example, 3 of the 21st chromosome causes Down Syndrome, and each other chromosome triplication causes unique symptoms.
melseg 3 weeks ago
what do the numbers mean?
annavicki68 1 month ago
I can't believe I've just found this video. My 22 year old daughter has Trisomy 9p. You took beautiful pictures.
alovelypet 6 months ago
sweet!
coyote70k 6 months ago
I just love this video! I had one of this miracles in my live for 13 years, believe me there's nothing more pure than there non-verbal emotions.
Thalya 8 months ago
i loved this i dnt even kno wat trisomy was until i fell across this vid these chil;dren are truly special and inspirational i moan so much about my life but now i dnt think i will these children are happy n smileing no matter wat god bless them all x
jackieaburt 9 months ago
I am a trisomic and my name is TIMMY 8D
DragonsilverXGenesis 9 months ago
@34point5ish Thankyou for saying that, god bless
jordon1954 11 months ago
@jordon1954 If we all had fathers like you, Earth would be an entirely different place! Blessed and full love!
34point5ish 11 months ago