EDS and FMS Part V

Living with Ehlers-Danlos syndrome and Fibromyalgia.

Category:

People & Blogs

Tags:

• Ehlers-Danlos Syndrome
• Fibromyalgia

[nocurenopay]

if she really has EDS it shouldn't be a problem showing us some tricks that only people with EDS can do, right?

[ShinyShirts]

Nocurenopy,

Yes, I can move my fingers about in ways that shouldn't be possible, but I'm not about to forcibly pop my fingers and other joints around just to prove that I have EDS. Any damage that I do to myself can become permanenent, and I don't want to take that risk. I wear finger braces now to keep them where they belong.

I've been diagnosed with EDS type III by three doctors, including a specialist at the University of Michigan.

[0Della0]

You wouldn't ask a person with Epilepsy to have a seizure in front of you just to 'prove' they have it; proving the existence of, or non existence of, EDS or any other medical condition not easily detectable to the naked (and untrained) eye, merely to satisfy a complete stranger, is completely inappropriate.

[youngmoodyfan]

Amazing. You don't sound selfish about complaining; you sound human. Pain sucks, and having people not believe you is worse. (My family's behind me 100%, but I know how it feels to not be believed, by mean gym teachers and so-called "friends") And don't listen to "nocurenopay".

[pamhoag]

Thanks

[vivisonga1111]

im a zebra too... xoxo

[BenNCM]

you are very inspiring!

[roethlisberger1229]

i have that too, my family doesn't believe me, as much, they see it in my skin though it stretches really far.

[wernhead60]

heard of any people with EDS on SSI my sister gets it for fibromyalgia

[evvofreak]

I suffer very painful and frequent migraines and I totally get it when you talk about people not believing you. And I know about the pain, the lack of energy, the foggy brain, the missing out on life... Chronic pain comes in many forms but it's effects seem pretty similar in people.

I wish you all the best. You're obviously very bright and you've got a lot to give the world...

Take care ;-)

[lotsandlotsofducttap]

hey just look at the posstive stuff then the negative parts in your life and it should be better... hope you get better...bye

[jjsrosie]

i have eds and it was triggered after i got lymes disease. i have NEVER met any one with it or talked to any one. so if u have it please talk to me so i can feel understood

[Rekisum]

Ouch... i'm thinking. I've dislocated shoulders, toes (wierd thing) and a ankle that also broke severely and were put back together with metal. Well... i'm still feeling lucky compared to you... very. It's not very often that im injured... it happens though.

Youre stronger than me... no doubt... inspiration is the keyword here...

Thanks for the video!!