Robin from Alabama~living with Multiple Sclerosis

I have had MS for 28 years. I am a survivor. Please leave me comments or questions you have about Multiple Sclerosis and how to cope. I am happy to talk to anyone that needs help understanding this monster. I have MS but MS does not have me..

Category:

People & Blogs

Tags:

• multiple
• sclerosis
• living
• with
• MS
• and
• family

[pokemom3]

I still take LDN 4.5 mg...seems to be working for me..Just stay positive and hopeful..I pray for a cure for MS one day..and we can all look back and say, wow that was a real monster that we just killed..kicked its butt! I do not take any of those drugs..copay,rebif, bata, avonex,and that other one..did not work for me at all. The LDN works fine..

[pokemom3]

Blessings to you Lynne...I pray u are getting all the medical attention you need in order to fight this disease. Have you tired the LDN? Please ask your doctors if you can try it..LOw Dose Neltrexone...I take 4.5 mg. And look up the story about Bill Roberts and LDN. ITs true and remarkable...Lots of love to you...keep intouch..

[22bellas]

Love it I what nero do u use and how is the Ldn working for I been on avonex. 7 yrs they want to switch me to copaxone so scary ivjave md n spinal cord. Ure email uvthem address would be great

[Lynneheal]

am on 38 years with MS in UK its not nice I cant walk hardly ect am nearly like Jackie and ha dto live in one room for over a year and left too

[GWJax]

Thanks for the video, I have SPMS and now my heart and my breathing is stopping because my brain forget to send the signal to the heart to beat and the lungs to breath. I just had a pacemaker installed just last week but I feel like I'm going through another major attack which will put me back in the hospital again. I have a wife that supports me but sometimes that's just not enough as you might know. For a year now I have been going down quick and I don't know what to do at this point.

Jax

[mamastein08]

Very well said,thank you

[MSVlogSupport]

Robin I was so excited to see that you finally did a video. After all these years seeing your artwork and all your positive posts on the Gee's, it was so nice to see and hear you!

What a great video and yes you are blessed for such a wonderful family

Love you bunches,

Andrea

[ThePennygirl]

Thank You,

For a such a nice video!

Family is so important! you are very blessed to have them! God is on your side.

28 years! wow, with no major flare ups! that is a blessing!

I really enjoyed listening to your honesty and ernst plus the faith........ we are here by the creator and it is what it is for now.

Best to you and your family,

Susan