Lennox Gastaut Syndrome
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Uploaded by Denae1977 on Feb 15, 2011
Heather Rileys journey over the last year from brain surgery to IVIG. You never know what tomorrow holds, Heather has taught us to enjoy each moment as it comes.
Uploader Comments (Denae1977)
All Comments (12)
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Hello my name is Tania, I really liked your video
I have a brother 12 years his name is Jair and he has Lennox Gastaut syndrome and also has surgery, he is very happy and beautiful.
They are amazing people, and forgive my English I'm from mexico (:
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God Bless
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I really want to thank you for sharing your experience. I look constantly for families and understanding to this diagnosis. My daughter is 13 and she is diagnosed with lennox gastaut. Her seizures are more controlled now but eventually her brain will fight off her medications and her medicine will be increased or changed. I pray for not only Heather but other kids like her and I pray for us because i know that there are good and bad days but God puts no more on us than we can bare. God Bless
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@Denae1977 i think heather is really scared right now :( and Danae i know ur scared. its scary to see a child having seizures and its heart breaking. they might die they might live. you can get worried the man who made heather (God) might choose her to go home with him.if you love heather that much god will understand :)
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Denae, I knew all of this about Heather, but seeing it like this, had me crying.. I walk the road so close to you guys, but so far away also.. My heart goes out to you, and you along with your family are wonderful.. You are such a strong person and a wonderful mother..
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It's wonderful of you to document and share your experience. You're extraordinary people.
zoeyjusko 7 months ago 3
@zoeyjusko Thank you, we are just sharing our experiences so that others will know they aren't alone.
Denae1977 6 months ago 3