Inside Todd's Head

This is a demonstration of what it was like to be me before surgery fixed my superior semi-circular canal dehiscence (SSCD). SSCD (also known as SCDS or Minor's Syndrome) is a disorder of the inner ear that can affect hearing and balance. Most people - including those in the medical community - have never heard of it. And even fewer have any idea what the symptoms are like. See http://scdssupport.org for more.

Category:

Education

Tags:

• inner
• ear
• super
• semi-circular
• circular
• canal
• dehiscence
• SSCD
• SCDS

[teddy35martha]

I was diagnosed with the same syndrome about two months ago. Dr. Clough Shelton is performing the surgery on the 30th of this month. I am both relieved and overwhelmed. I have read through your blog and it gives me hope. I don't know what to expect. I'm not scared, but just anxious to get better. Did you experience a lot of pain from the craniotomy? I would appriciate any advice from you. Thanks Todd! Ii was glad to read that you are doing much better:)

[ToddBradley]

@teddy35martha As far as pain goes from the craniotomy, I did have some pain afterward. The surgery cuts through one of the big muscles for the jaw, and so that muscle was pretty unhappy for a month or so afterward. As an aside, I've heard women do better with it than men because their jaw muscles are smaller.

[MostCamperKills]

This is very fascinating. I came here because I heard of this on an episode of Grey's Anatomy haha. Very cool video.

[ToddBradley]

@MostCamperKills I'm glad you enjoyed it. I look at it now and think what a terrible video it is from a videography standpoint, but I think that just goes to show how bad of shape I was in when we made it.

[ElleBieber7]

I'm only 13 and I might have superior canal dehisence and I have the same problems as you I hope your surgery worked

[ToddBradley]

@ElleBieber7 Hi, ElleBieber7. I'm sorry to hear you have the same inner ear problems. The surgery worked perfectly for me. I hope you are able to get your ear problems fixed, too.

[MostCamperKills]

@ToddBradley

Haha, no I don't think it's terrible at all--it's creative how it's done and the resolution is clear and good sound quality. Also this video is the only one that visualizes for the viewer and really immersize. The vision bouncing was something I experienced when I had a sinus and ear problem--I could feel that one like it was real. Thanks for sharing your story!

[Jbluvr1997]

Bless his heart :[

[ToddBradley]

@OmegaRiver I think sound is just as pleasant as before. In fact, it's more pleasant, because now I don't have other sounds interfering.

[ToddBradley]

@OmegaRiver Hi, OmegaRiver. My right ear is great now, and I don't have any of the problems with it. Unfortunately my left ear still has occasional problems. That's the side that didn't have surgery.