Sydenham's Chorea

My 7 year old was diagnosed with acute rheumatic fever and Sydenham's chorea. This is how it looks at one month after diagnosis. Caveat to parents - don't ignore strep. It's more serious than you think! And a warning - this is a child who is ill. People making obcene or obnoxious remarks will be reported.
Oh, and forgive the cinematography - I didn't realize moving the camera would affect the rotation of the video itself - and I cannot figure out how to fix it.

Category:

Science & Technology

Tags:

• Sydenham's
• Chorea

[Researcher2044]

The child is performing knowledge work in a location with movement in peripheral vision, Subliminal Distraction.Google that name for the site. Begin with the 400 word introduction then the "Letters" page for the short version. If this helps I am searching for cases to verify for publication.

[reverest66]

@Researcher2044 Actually, she has a condition called Sydenham's Chorea which is a manifestation of rheumatic fever. With medication, her movements are completed controlled. I don't think she is a good subject for the work you're doing, and frankly, she's been poked and prodded so much in the last 12 months, I don't want to expose her to anything more. But thank you.

[reverest66]

Thank you all so much for your kind words and prayers. It has been a very long road to recovery - but thanks to wonderful doctors and medication, my little girl is pretty darned close to back to normal. First the chorea got so out of control that she lost the ability to read and to walk. We had to carry her places, because she fell down after taking two or three steps. A stay at Children's National Medical Center in Washington DC led to some answers. Now, she not only walks, but runs!

[KJust70]

Hi there. I am television executive producer putting together a piece on illnesses connected to strep throat. I am wondering if you would email me privately to confirm some things about your daughter's experience and if you would be willing to let us broadcast this video. You can reach me at Kelly.Just@kctv5.com Thanks,Kelly

[Researcher2044]

Thanks for the reply. She can still have Subliminal Distraction exposure to cause symptoms. Investigating does not require poking or prodding. Just watch and avoid having detectable movement in her peripheral vision when she performs any activity requiring full mental investment. It would not be possible to separate one symptom from the other. If the frequency of symptoms decreases that would tell you she did have SD exposure.

[Yemenjapan]

such a beautiful girl

May Allah bless her 

[LWOODHEGEMAN]

THANK YOU FOR POSTING THIS. Our daughter was diagnosed over labor day weekend and is JUST NOW improving... i have two questions a) have you noticed the movements get worse when your daughter is watching television?  b) is she taking penicillin injections? we are starting those soon. please reach out to me via email-- dwright@kctv.com i would like to share our videos of our daughter with you. best-- dana

[QueenPaxi]

I hope she is better now, but if she is not google PANDAS. There is treatment for post strep complications. I'm sorry to see she has to go through this. I do hope she is better.

[LoveTheKat90]

I'm so glad she is doing better!

[gggu]

Thanks for this video! This is helpful for me as I'm learning about the disorder. Textbooks can only describe so much.

Glad to know she's making a recovery.

[axisatlas]

it so sad , she is a beatiful girl , it wa a faringoamigdalitis?

what happend there?