10 years after HLHS
Uploader Comments (Dawn42273)
All Comments (36)
-
in 20 yrs old and i also have HLHS. it was performed by Dr. Pariki at the Rilly childrens hospital in 1991. and moved to the peyton manning children's hospital at st. vincent hospital
-
Look at my Channel, my baby sister has this syndrom! look at the video Living with half a heart! I need suporters and likes, so she can be discovered! PLEASE i just did this today. Like this so it can be seen! PLEASE just like my videos subscribe do whatever to get her discovered!
-
I am a mom of a 11year old son HLHS and we did not find out till he was 5 days old when he almost died in my arms and to c him now he is a true angel sent to us.It can be done and it is a very hard road but if u just have faith and luv u can make it through.
-
Continued- So thank you again, this video brought tears to my eyes in the best way possiable. We will pray for Victoria, she is a strong and beautiful young lady. <3<3 My heart is with you all. God Bless!
-
Thank you for posting this, right now my husband and I are sitting in the waiting room at Children's Medical Center while our baby girl gets her Glenn. I have been terrified by her condition but it has not stopped me from treating her like a normal baby whenever I get the chance. We have not been able to take her home yet and she is 4 months. It has been hard for sure but we have not left her side not once since she entered our lives. Seeing videos like this really gives me hope for her future.
-
I've been at it 23 years. God is Amazing!!! I've had 4 surgeries, Norwood, Gleen, attempted Fontan, and a Fontan. Fontan was 11 years ago. God is Good!
-
Dawn42273, thank you for this video, it has put a lot of faith to my heart. My son also was diagnosed with HLHS on 9-22-10, he was born 9-21-10. He also had his first surgery on 9-28-10 (Norwood procedure). thank god and the doctors that operated my son and gave him a greater chance to life. Thank you and God Bless You and your family for this video.
-
Dawn42273, I thank you for this video, you have put lots of faith in my heart. My son was born in 9-21-10 and diagnosed with HLHS on 9-22-10, he is getting his 8 hour surgery today 9-28-10. Thank you and God Bless You
-
Thank you so much for this video, it has put faith in my heart. My son was born 9-21-10 and diagnosed with HLHS on 09-22-10, he is getting his surgery on 9-28-10. this video just made me feel that there is hope for my son to have a normal life. Once again i thank you, God Bless You.
Alinaaskins309...I UNDERSTAND...I can't tell you how many down day's I had..It is an emotional Journey...It is stressful but it WILL GET Better and u will look back and be so thankful!!
Dawn42273 1 year ago
Aoifek71...thank u so much for your comment..I am so happy that u have some hope now. My Victoria will be 10 in November and she is doing just perfect. It is certainly tough but you will all come through as a much stronger family and will encourage others too. I pray to GOD for your little girl that she will come through her surgeries healthy and strong!!
Dawn42273 1 year ago
I am 19 years old and I have HLHS, I had the Norwood procedure done in 1991 by Dr. Norwood.
mrkrabz1991 1 year ago
Mrkrabz...wow...that is awesome that Dr. Norwood performed your surgery. How are U?
Dawn42273 1 year ago
My wife and I enjoyed your video. It is a video of hope for us as our son will start his HLHS journey when he arrives (delivers) mid march. Thank you so much. Victoria is beautiful and a picture of hope.
bikesrunmountains 3 years ago
bikesrunmountains...how is your son? I hope the surgery went really well..your almost there!
Dawn42273 2 years ago