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David Cannom, MD and Margaret Aranda-Ferrante, MD ...on Eyewitness LATV NEWS

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Uploaded by on Jul 3, 2009

dysautonomia ME validation real disease unknown frustrating frustration suicide depression wheelchair walker cane naps rest hydration low blood volume eat more salt not intended as medical advice ask your doctor lots of love = LOL

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  • I have met and now personal know both Dr. Margaret Ferrante and Dr. David Cannom. On my first visit, Dr. Cannom diagnosed me with Dysautonomia and this was after years of going from Dr. to Dr. and never getting a diagnosis that I felt was accurate. I now have a name to put to my condition and a doctor who knows how to treat it. Thank you Dr. Cannom and Dr. M., without the help of either of you, I would still be searching for a diagnosis.

  • @jd450lh : You are the best! Thank you for being willing to try something new, to go boldly out where you never thought you would go, and for just being you. I wish you could come over for Thanksgiving....just buried my dad and not prepared for a Holiday :-). But God is good and little Miss Missy needs to go to bed now, so I have to be a Mommy and get off the computer! LoLv LoLv LoLv LoLv

    Your Sister in Christ,

    Margaret

  • I have Postural Orthostatic Tachycardia Syndrome and I am 16, my specialist said I may grow out of it. My main symptom is being dizzy all the time, it's horrible.

    Good luck with everything and stay strong.

  • Aw hun! I am so sorry! I was born with dysautonomia. I know how much it sucks. :( Hang in there chica!

  • @squishedlizard : I know that there are good support systems out there for Familial Dysautonomia, and I hope you have their national foundation there to help you. xoxo and LoLv!

  • @Stacey31233 : and you stay strong, too, my friend! We all need one another to keep up the light! Sending you xoxoxo from Los Angeles! LoLv.

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  • @em1270 : Good question. The dysphagia swallowing problems are separate, from spinal stenosis (squished spinal cord) requiring surgery. I am getting better, especially if you view old vids compared to now. Thank God for all my friends, especially my YT friends, who have had the most profound effect on my efforts to stay alive. LoLv.

  • Oh wow. So that is what you have. You poor thing. Does that explain the swallow problems too? Thank goodness it will eventually go away.

  • After seeing over 22 drs in Georgia over a period of a year we were finally able to go to the Mayo Clinic in Rochester, Minnesota (May 2009) where my 16 year old daughter was diagnosed with Dysautonomia/POTS. She missed over half of 10th grade, over half of 11th grade and is now attending her 12th grade year on the part time disability program. Rachel's head doctor in Rochester is Dr. Philip Fischer and had it not been for him and Lord leading us there we still would not know what was wrong!

  • I am praying for you dear sister Margaret.Peace to you in the arms of the Lord. Love you,Mary

  • @sandiecoop1 : I am so grateful that we have met. How are things with your boy?

    Wishing you LoLv.

  • @sandiecoop1 : and thank you for the rare character trait of having compassion..so much compassion...for others. Please see my latest vid & maybe you could also help me encourage people to contact their State Medical Board and let's see some more changes :=). LoLv to you and yours. Margaret

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