Tourette Syndrome Awareness for Anthony
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Uploaded by raes519 on Aug 24, 2007
I made this video for my 4yo son Anthony, to spread awareness of Tourette Syndrome. My hope is that he will encounter people who are understanding throughout his life. People with TS do not tic on purpose and it is NOT a joke.
April 2009 Update: Anthony is almost 6 years old and still has minor tics, the diet has really helped keep them that way. He seems to be worse in the summers, possibly chlorine pool water is a tic trigger for him.
Now we are watching and waiting to see if Anthony's little 4year old brother will start any tics.
2010 Update: Anthony was also diagnosed with Epilepsy in April.
Song is "Stand" by Billy Ray Cyrus and Miley Cyrus ("Hannah Montana")
Uploader Comments (raes519)
All Comments (36)
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Great video on TS Awareness. My son is now going on 16 and was diagnosed with TS when he was around 10. What's frustrating was my wife and I suspected TS all along but the family doc kept saying no. Finally we demanded a psych referral and he was diagnosed shortly afterwards.
He's a quiet boy and prefers to do solo things. It's astounding how many children are being diagnosed with TS lately and I am convinced a lot of it has to do with the chemically enhanced foods we've ingested for years!
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i so loved this video many good wishes for u and Anthony my son also ha ts we struggle evey day some days are good ones some are bad but thru it all is is loviing and fun to be with
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My 9 year old son also has TS. The most important thing I have learned is to see my son - not the TS. I have grown to just tune the tics out and really focus on what my son is trying to tell me. It has taught me patience and understanding. I hope others can see past our children's TS to the wonderful people that they are.
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I have a 5 1/2 year old with TS. He has a lot of tics. Last year at school he was labeled the wierd kid that jerks his head to one side and barks! That broke my heart. People stare and he knows it. He passes out TS awareness cards to those people and also educates the children in his class about TS. Hes a strong smart boy and I truley believe he will be the cause of his own solution. Just remember kids are tough! Sometimes even moreso then the parents! God bless!
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this video is awesome!!!
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This video is so good.... I couldn't imagine but I'm sure you are the strongest mom along with other moms with TS etc. I really like the information included. Good to know
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Anthony's a beautiful child! Kids were not cruel to my son. Unfortunatly your video is all about the tics. What else does anthony have, I have never met anyone that had TS and didn't have an associated disorder. Maybe there are people that do but then, they wouldn't have Tourettes syndrome. I think your anthony is going to be just fine, your accepting of him and I think you'll teach him to be accepting of himself and what he has. I can't help it, this is what I do because I have Tourettes.
BryceVandergriftMOM 9 months ago
@BryceVandergriftMOM yes, he also has ADHD and epilepsy.... a neurological triple...
raes519 9 months ago
Awesome video! My son is 11 with TS. He too has done well on the GFCF diet, but has several other food allergies so his diet is limited right now. I would love to know how the peptizyde has worked for your son as I have just begun to look into enzymes. Have you tried any other treatments for his food allergies like low dose allergen shots? Thank you!!
snuffyandus 2 years ago
I have not tried allergy shots. I have kept him GFCF, he hasn't had the Peptizyde in quite a while. I had bought some, but since he was only using them on an occasional basis, they would go bad before we used them. Maybe I'll get some more sometime though and use them more often, allowing for more "slips" and see how it goes.
raes519 2 years ago
I'm glad you have the attitude that it's not a bad thing. I had to keep my tourettes from my mom for 4 years because she didn't want me to go through it like my brother did. When I finally told her she cried and blamed herself, but that only made me angry that she couldn't be happy about what I was. You should be proud of yourself for supporting him.
lotsofcurlz36 3 years ago
Thank you very much for your nice comment. I'm so sorry you felt you had to hide it from your mom.
raes519 3 years ago