Scoliosis Surgery & Marfan Syndrome

my son has marfans.

thats a great improvement, i hope that akk the rest of her ops go well, glad to see she has a wonderful smile even after what she has had to go through

i have 83 degrees
pray for me..

hi im kathrine 17 yrs old
im hir in philippines
i have scoliosis too & marfan syndrome
i have my operation dis coming july 20
i hope it will be success

godbless

hi. i am from Peru, i am 22 years
i have scoliosis too 55 degrees curved and i am worried
soon i going to have my own scoliosis surgery but still i don't know where
please you can help me?
where you had your surgery? (donde tuviste tu opercion?)
how many dollars you spent? (cuantos dolares gastaste?)
por favor ayudame tengo q operarme pronto porque mi escoliosis esta afectando mi salud
God bless
i understand English less. Thanks but I speak Spanish

Naomi has her surgery at the Royal National Orthopaedic Hospital in London. We pay for Healthcare through our taxes in the UK, so we dont know how much the surgeries cost. Naomi has her 5th spinal rods extension next week.

i have marfan symdrom too:') right now i have a brace and i had a pectus reapearment very painful but wat i like about my deasise is that my fingers are very flexible i never saw anyone with marfan like me do u go to camp del corazon??? i go there well good luck i know how how it feels to be this way:'(

I got diagonosed marfan syndrome today. I am 17 years old. I will have to get rods in my back. They will then break my foot so I can have arches on my foot. I had a hugh bruse on my foot. Thought nothing of it. I respect your daughter and she will be in my prayers.

bless her she is so brave ! im 13
ive got scoliosis - two curves the top is 60 the bottom is 45. ive got to have permanent rods and my spine fused and even though im used to surgery i could nt go through wat she has to have until she is 13. tell her she is soooooo bravee xx hope it all goes well :)

I was diagonsed with marfan after my lung popped at work,so weird