Profile
Channel Views:
4,407
Total Video Views:
1,398
Age:
16
Joined:
February 19, 2009
Last Sign In:
3 days ago
Subscribers:
10
Website:
We are non-profit organization that provides information for families and physicians about this disorder, and local self-help support groups for families affected with VHL. We are dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected by Von Hippel-Lindau disease.
About Me:
Hometown:
Boston, MA
Country:
United States
Recent Activity
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vhlfa favorited a video
On Oct. 26, 2009 during a personalized medicine event at the American Association for the Advancement of Science (AAAS, www.aaas.org), National Ins...
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vhlfa favorited a video
Dr Francis Collins (Director of the National Human Genome Research Institute) explains why he believes in a personal God and how his faith is comp...
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vhlfa favorited a video
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Subscribers
(10)
Channel Comments
(1)
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EdgeScreen
(6 months ago)
E.D.G.E! THANKS FOR HAVING US.
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