VHL Family Alliance

by vhlfa

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My Life with VHL short version 2 VHL Family Alliance - YouTube.mp4

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by vhlfa 2 months ago

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2:08 My Life with VHL short version 2 VHL Family Alliance - YouTube.mp4 vhlfa 84 views 2 months ago
2:01 Jill-Sue-Chris.mp4 vhlfa 63 views 4 months ago Joyce Graff talks with Jill S. from Canada, Sue B. from Tennessee, and Christiane G. from Germany, attendees at the 10th International Medical Symposium on von Hippel-Linda...
3:39 VHL European Leadership Meeting vhlfa 79 views 7 months ago VHLFA leaders from all across Europe, from the United States, and from Australia met in Cologne, Germany, in 2011 to enhance collaboration at the level of the European Unio...
2:22 Susan Skipper Fred MaryLou vhlfa 51 views 11 months ago
3:23 Dr. Jonasch and Dr. Walker talk about their research vhlfa 206 views 11 months ago Dr. Eric Jonasch (urologic oncology) and Dr. Cheryl Walker (genetic research) of M.D. Anderson Cancer Center talk with Joyce Graff about their research on von Hippel-Lindau...
1:18 Board vhlfa 704 views 11 months ago Introducing the Board of Directors of the VHL Family Alliance at their meeting June 2011.
0:17 VHL Family Alliance Logo Animation vhlfa 288 views 2 years ago We are an Alliance of families, friends, physicians, and researchers, working together to improve diagnosis, treatment, and quality of life for individuals and families aff...
3:00 Meet VHL - Help us find a cure! vhlfa 3,584 views 2 years ago Students at Boston University's Center for Digital Imaging Arts in collaboration with the VHL Family Alliance have produced this video to explain what VHL is and the very i...
1:55 Steven Video vhlfa 598 views 2 years ago VHL Steven Video
5:06 An Introduction to Von Hippel LIndau disease vhlfa 3,000 views 2 years ago A Comcast Newsmaker interview with Jeannie McCoy, board member of the VHL Family Alliance, about her experience and her family's experience with Von Hippel Lindau disease.

About VHL Family Alliance

We are non-profit organization that provides information for families and physicians about this disorder, and local self-help support groups for families affected with VHL. We are dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected by Von Hippel-Lindau disease.