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voxnihili281

voxnihili281's channel

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74 subscribers
17,210 video views
  • voxnihili281 voxnihili281 commented 8 months ago

    Tourettes - Swearing (Vulgar content)

    I have had a few changes in my tourettes this weeks

    I have a new vocal tic

    and I developed coprolalia (swearing)

    Be warned that I start to scream a...

    voxnihili281 said:

    I'm so sorry you're going through this right now. The I HAVE TO STOP IT NOW phase is the worst. Then comes the I CANT DO ANYTHING ABOUT It phase and finally the I STILL HATE THIS BUT ITS NOT SO BAD, REALLY phase. And it takes a while to get there. You'll get there. Form one ticcer to anot...

    • Voxina's Tourette's Talk) Update

      I have severe Tourette Syndrome, a movement disorder that causes uncontrollable words, sounds and movements. This is my life.

      voxnihili281 said:

      Toobad they didnt have the Jan reatreat!!!!! Now gotta wait until JULY! OOOOOOOh, it's only a month, it's JUne, I keep forgetting it's june. I just cant forget that I have 2 days letft of school.

    • Voxina's Tourette's Talk) Update

      I have severe Tourette Syndrome, a movement disorder that causes uncontrollable words, sounds and movements. This is my life.

      voxnihili281 said:

      @IsThisTourettes

      I miss you too! Can't WAIT until the january teen-retreat thing! They are having it...right?

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  • voxnihili281 voxnihili281 posted a bulletin 8 months ago

    Paradoxical reaction. need I say more?

  • voxnihili281 voxnihili281 posted a bulletin 8 months ago

    I am driving! driver's ed!!! Tics are problematic, but I'M DRIVING!!!!!!!!!!!!

  • voxnihili281 voxnihili281 commented 9 months ago

    Videos that make fun of Tourette's Syndrome...Are ok?

    Someone e-mailed me saying that they didn't have friends because they had Tourette's. My answer to that might be a bit harsh, but try to be open to...

    voxnihili281 said:

    I have a slightly different POV. For me, Tourette's DOES include random, loud extremely embarassing swearing. I hit myself, I jerk so much I can barely walk at times. And idiots at school love to laugh when they think I can't hear. But they're just that, idiots. I do not exactly appreciate p...

  • voxnihili281 voxnihili281 uploaded 9 months ago

    voxina's Blog: My artwork

    I show and talk about some of my artwork.

    Note: I have Tourette's, and smart comments about why I make strange movements or make noises are not ap...

    • voxnihili281 voxnihili281 commented 8 months ago

      voxnihili281 said:

      Actually, my tics persist to be severe. Not all the time like it was, but still, almost every day, I have periods during which walking, sometimes even writing or sitting, is difficult or painful due to the jerking movements, which happen from every several minutes to every few seconds.

    + One more: Commentedshow less

  • voxnihili281 voxnihili281 commented 9 months ago

    Voxina's Tourette's Talk 1) summary

    Tourette syndrome is a neurological disease, not some sick joke. I have extremely severe, disabling tics. And I can't control any of this. If you w...

    voxnihili281 said:

    @Corina13017

    As to why THAT word...there is no reason. People with my disorder do not choose the words we end up saying in tics; it just happens. Most people don't have swearing or socially derogatory tics, but I do. I've been blessed, though, with great friends who don't mind, who understand...

    • Voxina's Tourette's Talk 1) summary

      Tourette syndrome is a neurological disease, not some sick joke. I have extremely severe, disabling tics. And I can't control any of this. If you w...

      voxnihili281 said:

      @tishafish I've learned ways to calm my body down, learned its quirks, and use those to my advantage: when I'm playing music or absorbed in something, it slows down, sometimes a lot. I can also do deep breathing/meditation/hypnosis to almost completely stop my tics. They also tend to be a lot b...

    • Voxina's Tourette's Talk 1) summary

      Tourette syndrome is a neurological disease, not some sick joke. I have extremely severe, disabling tics. And I can't control any of this. If you w...

      voxnihili281 said:

      @tishafish yes, they stop. I think so, at least

    • Voxina's Tourette's Talk 1) summary

      Tourette syndrome is a neurological disease, not some sick joke. I have extremely severe, disabling tics. And I can't control any of this. If you w...

      voxnihili281 said:

      For anyone who saw it, someone posted some pretty ignorant things here. i removed the comments, and for the record, Tourette does NOT AFFECT INTELEGENCE.

      Yeah, believe it or not, I cannot help the things my body does, and, as an update, I am very happy to say that I am attending regular school,...

    • voxnihili281 said:

      This is AWESOME! I'm Aspie, and this is CLASSIC! Seriously, if you put two aspies together, we start talking over each other about sciency thigns that other people look at you like...? but aspies totally get it. its so funny! Seriously, you have no idea unless youve been aspie how accurat...

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  • voxnihili281 voxnihili281 subscribed to annelee1969 1 year ago

  • voxnihili281 voxnihili281 uploaded 1 year ago

    January Video blog

    idk...just me. Ps: I don't appreciate Tourette jokes. its not funny.

    • voxnihili281 voxnihili281 commented 1 year ago

      voxnihili281 said:

      yeah. i have htose tics when I walk too. if i have it sitting down i also have it walking, generally, the tics are indiscrimate.

    + One more: Commentedshow less

  • voxnihili281 voxnihili281 commented 1 year ago

    Tardive Dyskinesia 5/30/10

    Updated video of my daughter's Tardive Dyskinesia. She has been off Invega (antipsychotic) since 5/25/10, and the movements are this bad after only...

    voxnihili281 said:

    TheeBonis, don't give up. There are treatments, that can make enormous changes to one's functionality. Also, keep in mind that all cases of TD are not permanent.

    I have dystonia (remitted), and curently have orofacial dyskinesias due to a drug reaction used to treat my primary movement disorde...

  • voxnihili281 voxnihili281 commented 1 year ago

    Hunter making weird pug sounds

    Hunter playing with his toy and grumbling

    voxnihili281 said:

    This is so much like my pug/beagle hybrid puppy! Although you should hear her when she's mad...then she grumbles even more than Hunter is....it's so weird, in a cute way.

    • Shelby Popcorning!

      Here is a movie of Shelby Popcorning! She is 4-5 weeks here

      voxnihili281 said:

      Oh my gosh, this is SO FREAKING CUTE! It makes me want a guinea pig...although my dogs are jack russels, so you can kinda see where that might lead...which would be very sad. So I guess I'll have to envy people who can watch their guineas popcorn all day and night. until I get one. it's just ...

    + One more videoshow less

  • voxnihili281 voxnihili281 uploaded 1 year ago

    Voxina: My Fall

    I'm not doing so great, but this fall was awesome. I have Tourette Syndrome, a brain disorder that causes uncontrollable movements and sounds, an...

    • voxnihili281 voxnihili281 commented 1 year ago

      voxnihili281 said:

      The day I made this video, I had a serious cold. Eh, and the shirt I am wearing in the video is from Camp Twitch and Shout, a camp for children and teens with Tourette in Georgia.

    + One more: Commentedshow less

  • voxnihili281 voxnihili281 commented 1 year ago

    Suncatcher

    Brownstown Middle School 6th grade band concert.

    voxnihili281 said:

    little heavy on percussion, but still pretty good. I played this piece. love the music!

    • Teenage Tourettes Camp part 1

      Tourettes Association

      http://www.tsa-usa.org/

      I'm updating this description with more info to provide more understanding of tourettes. I'm putting...

      voxnihili281 said:

      @sweYoda2

      For your information, there are many people with Tourette syndrome who go on to have stable jobs.

      Take Brad Cohen for instance, a guy who to this day, barks and twitches at the drop of a hat. Everybody thought he was nuts when he went to college to be a teacher.

      Look at him now. He...

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  • voxnihili281 voxnihili281 posted a bulletin 1 year ago

    Thins, for me, are looking up. I'm back in school, thanks to a wonderfully understanding student body, and I'm enjoying life more than ever now. Gonna post an update vid soon.

  • voxnihili281 voxnihili281 commented 1 year ago

    Where Tourettes meets Self Injury

    My tics are doing better than they were. ;)

    I have an official Tourette's diagnosis

    Talking about in what ways self injury is an aspect of tourettes

    voxnihili281 said:

    @gringoboy9

    It's awesome that you found a medication that seems to be helping.

    I took it on and off for my Tourette's, when I was in a sort of tic episode to calm down...and then it just put me to sleep, but had to stop it when I started to have dyskinesia...not fun...

    Risperdal does have sid...

    • Where Tourettes meets Self Injury

      My tics are doing better than they were. ;)

      I have an official Tourette's diagnosis

      Talking about in what ways self injury is an aspect of tourettes

      voxnihili281 said:

      FYI: may contain triggers for tics...

      I have tics to hit, kick, bite and scratch myself and bang my head.

      And I also have coprolalia, though I use a special mouthpiece, a "Sylencer" to muffle it, called a court stenographer's mask.

      When I have bad self-hitting tics, I put a washcloth in a hat...

    • Tourettes after all ;(

      This is an update on my movement disorder. I realize now that it is Tourette syndrome.

      Sorry if you find I rambled on too much.

      voxnihili281 said:

      Whenever I focus on something, (other than my tics, lol) my tics decrease significantly. Which is pretty merciful, as I'm usually engaged in something, be it cartoons or Dr Who or reading about neurosurgery (I got kind of obsessed with Deep Brain Stimulation for a while, it being about the onl...

    • Voxina's Tourette's Talk 2) Desire

      Before you start laughing uncontrollably, consider the fact that I have an extremely disabling neurological disorder and movement disorder, Tourett...

      voxnihili281 said:

      Someone found it funny to post an ignorant comment on here. I personally don't find it funny. I mean, please, just because I have a movement disorder does NOT mean I don't have feelings.

      FYI: I WILL REPORT INAPPROPRIATE COMMENTS!

    + 2 more videosshow less

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