Profile
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Joined:
Feb 19, 2009
Latest Activity:
3 weeks ago
Subscribers:
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Website:
We are non-profit organization that provides information for families and physicians about this disorder, and local self-help support groups for families affected with VHL. We are dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected by Von Hippel-Lindau disease.
About Me:
Hometown:
Boston, MA
Country:
United States
Channel Comments
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vhlfa favorited a video
VHLFA leaders from all across Europe, from the United States, and from Australia met in Cologne, Germany, in 2011 to enhance collaboration at the l...
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Nutrition experts have unveiled a visual guide designed to help people develop healthy eating habits. The guide addresses deficiencies found in a s...
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vhlfa commented on Von Hippel Lindau syndrome, spencer
"Nice job! For more about VHL please see vhl.org -- Note that people with VHL do not get the skin bumps pictured -- that's another disease, neurof..."
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