Justter
tslu1970's Channel
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Tribute to my mom
Rylee dance
M.E. the Invisible Disease
Quick update and some questions
M.E. Please have some compassion
Change is coming for M.E. sufferers!!! Part 1
Do you need to SEE it to BELIEVE it?
Don't Assume
ME Neglect
Hope for M.E?
My original "introduction" video.
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tslu1970
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Profile
 
Name:
Teri, aka Justter
Channel Views:
1,775
Total Upload Views:
2,862
Age:
41
Joined:
Jul 18, 2011
This channel is to support, raise awareness, and educate people on a very poorly understood disease called myalgic encephalomyelitis.
About Me:
 
Hey guys, this is Justter, and this is my new channel. I had closed my justter channel and was unable to reopen it.

Thanks so much to those of you who have been willing to stick with me, and welcome to those who stop by. I am trying desperately to reach all of my previous friends and/or subbers, but there were about 150 of you, so I can only hope that I can find you all again.

First, I will tell you that I am predominantly Cherokee Indian, so that will answer any more questions about that, lol. I also live more like a vampire than those who actually believe they ARE, hahaha.

I suffer from the severe form of M.E. *myalgic encephalomyelitis* and all that goes along with it such as severe tachycardia, dysautonomia, cognitive dysfunction, GI problems, bladder and bowel problems, the inability to regulate my body temp. chronic and severe pain, etc. I also have adult-onset sporadic hemiplegic migraine disorder.

I have been ill for going on 16 years now, so I consider myself a veteran. ;)

I was also diagnosed with vesicoureteral reflux disease when I was 5, and as a result have been in and out of hospitals most of my life, sometimes in renal failure. I now only have 1 functional kidney, as my right one atrophied due to scarring from recurrent infection.

I have mitral valve prolapse with slight regurgitation, which I attribute to the M.E.

I am married to a wonderfully compassionate and understanding man who is not only the love of my life, but also my best friend. Between us we have 4 incredible kids and 1 beautiful granddaughter.

If you are reading this and do not know what M.E. is, please do your part and educate yourself.

http://ahummingbirdsguide.com/

If you don't understand how severe ME is, please visit the Patient Memorial List!

http://www.ncf-net.org/memo...

Live to fight and fight to live.
Influences:
Kind-hearted fellow warriors.
Hometown:
Oklahoma
Country:
United States
Occupation:
Raising awareness and education. Former cosmetologist who did hair AND makeup in my own salon for many years. After becomig ill, I had to close my shop. I then became a medical transcriptionist, and was employed for a while, but my cognitive dysfunction and inability to type at times caused me to have to quit that job.. I am officially prn status now (as needed), but they know I just can't do it now.
Interests:
Scrapbooking, crafting, jewelry making. I used to truly enjoy all of these things and hope to one day be able to do them again.
Movies:
I love 80s films (Yep, I'm a child of the 80s), horror, and the occasional chic flick. I love all of the Underworld movies, possibly because I live so much like a vampire, lol.
Music:
Pretty much anything but rap or country.
Books:
When I was still able to read and comprehend what was being read, I really liked books by John Saul, Dean Koontz, and James Patterson.
Recent Activity  
tslu1970 uploaded a new video (1 month ago)
My mom passed away Sept. '08, but I've found that the loss and emptiness I had then is still just as strong. RIP Mama. I will always love you and...   more
 
 
tslu1970 uploaded a new video (1 month ago)
This is my grand baby dancing to "Beat It." She's the light of my life.. :)
 
 
tslu1970 Just a quick update. Saw my doc. on Mon. Got some potential news, but I'm not sharing it until we know for sure. As soon as insurance kicks in, I will be going to a neurologist and a rheumatologist. I am still not well enough to get another video up, but I promise to do so as soon as I am able. Hugs, Teri
(1 month ago)
 
 
tslu1970 K all. I have to get offline now. ;( Hope to see you all later.
(1 month ago)
 
 
tslu1970 I'm here today and will try to get most of your new vids watched. Not sure how long I will be able to be here, but will do my best.. I wanted to let you all know that I am getting ready to go on a new treatment plan, guided by my doctor, and will be documenting my journey. I won't be mentioning exactly what I am on until I see if it is going to work for me. Big hugs to all of my friends and fellow fighters out there. Teri
(1 month ago)
 
Channel Comments
FootprintsIntheSand7 (1 week ago)
Sending love, prayers and hugs over to you tonight Teri <3 Xo
austintoros (2 weeks ago)
Hi tslu1970, it looks like you're a fan of basketball. Check out our site. We're the NBA Developmental team for the San Antonio Spurs.
kaiserMECFS (3 weeks ago)
hang in there.... you are in my thoughts..... Kisses, Francesca
jd450lh (1 month ago)
Hi Teri, I'm sorry I took so long to respond to your comment, but between having computer problems and not feeling well, I've gotten behind on my responses. Thanks for the info, but I couldn't find any link to a pdf download anywhere on their website, but the site did look very interesting and informative. I hope you are feeling better...you are in my prayers, my friend!

God Bless,
Jeff
AllAboutLOVEatYuToob (1 month ago)
I'm praying for you Teri.....May God help you be well :-)

Beacause your a nice lady :-)
AllAboutLOVEatYuToob (1 month ago)
HELLO TERI GREETINGS TO YOU FROM MY CHANNEL OF LOVE !!!

YOUR FRIEND,NICK FROM SYDNEY,AUSTRALIA :-)
AllAboutLOVEatYuToob (1 month ago)
ღஐ♥══════════ஜ۩۞۩ஜ══════════♥ஐ­­­­­­­­­ღ
●▬​▬❤ALL ABOUT LOVE AT YOU TUBE❤​▬▬●
ღஐ♥══════════ஜ۩۞۩ஜ══════════♥ஐ­­­­­­­­­ღ

●▬​▬▬▬​▬❤ITS ALL ABOUT LOVE❤​▬▬▬▬​▬●
tmleafs75 (1 month ago)
Hi there...Just dropping in to see how you're doing. Hope all is well.
thedeafpancakes (1 month ago)
i dont know jer but shes in my prayers ok and Yehwah will strengthen her k believe that and if theres anyways you could play my song "Yehway (Grace nailed to Grace) " i believe she'll be very uplifted
debradebbiedeb (1 month ago)
hope you are feeling better soon soon soon. big hugs. love you. deb
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