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1 week ago
Understanding the Importance of Clinical Trials in Tuberous Sclerosis Complex Research
Because participating in a clinical trial is an important personal decision, this video produced by the Tuberous Sclerosis Alliance offers basic in...
260 views
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2 months ago
Who Attends a Legal IEP Meeting?
In this video from the Tuberous Sclerosis Alliance, Director of Advocacy & Education Dena Hook discusses who should attend your child's legal Indiv...
67 views
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3 months ago
What If I Disagree with My School's Evaluation?
If you disagree with the school's evaluation, you have a right to an Independent Educational Evaluation (IEE). This video with the TS Alliance's Di...
54 views
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5 months ago
Introducing the TS Alliance Adult Initiative
Keith Hall, an adult with TSC who serves on the TS Alliance Board of Directors, explains the organization's new Adult Initiative.
212 views
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8 months ago
Tips for Requesting a Special Education Evaluation from the TS Alliance
If your child is still struggling in school, even when you have done everything possible to support him or her, requesting a special education eval...
177 views
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11 months ago
15 Tips to a Better Individualized Education Plan (IEP) from the Tuberous Sclerosis Alliance
For many parents, IEP meetings can be overwhelming but are necessary in getting appropriate services for your child. This video, produced by the T...
654 views
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1 year ago
Tuberous Sclerosis Alliance 30 Second PSA with Julianne Moore
Long-time TS Alliance supporter Julianne Moore speaks about tuberous sclerosis complex (TSC), a genetic disorder that causes tumors to form in vita...
669 views
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1 year ago
Tuberous Sclerosis Alliance 60 Second PSA with Julianne Moore
Long-time TS Alliance supporter Julianne Moore speaks about tuberous sclerosis complex (TSC), a genetic disorder that causes tumors to form in vita...
4,779 views
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1 year ago
La Esclerosis Tuberosa Spanish Introduction to Tuberous Sclerosis
La Esclerosis Tuberosa es un desorden genético que afecta diferentes órganos y sistemas del cuerpo, produciendo tumores en lugares como el cerebro,...
2,753 views
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1 year ago
Infantile Spasms and Tuberous Sclerosis Complex (TSC): A Devastating Diagnosis
Infantile spasms are a somewhat rare, but catastrophic, form of epilepsy, which almost always start before one year of age. They are one of many sy...
6,322 views
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About Tuberous Sclerosis Alliance
The Tuberous Sclerosis Alliance is dedicated to finding a cure for tuberous sclerosis complex while improving the lives of those affected.