She did not die. She is now 4 1/2 years old and doing great. She's still super tiny, and her 2 year old brother is bigger then she is. I'll make a new montage someday soon :D
I am a Native American, born and raised in sunny California. My husband and I have 3 children (expecting #4 in April 09) that we are homeschooling. 2 of my children and I have a rare genetic skin disorder called Epidermolysis Bullosa (EB), of the Dominant Dystrophic sub-type. For more information on EB and our butterfly children, please just search youtube for: Epidermolysis Bullosa. There's 30 videos packed full of information, insight, and emotion waiting for you to watch and learn.
Age
34
Hometown
Roseville CA
Country
United States
Occupation
Stay at home Mom, Teacher, and personal health care provider
My tiny girl.
Kayleigh was born weighing 1950 grams. The doctors induced me at 37 weeks, and she was the size and development of 34 wks. By 1 year, she was 15 po...
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tinykittenz said:
She did not die. She is now 4 1/2 years old and doing great. She's still super tiny, and her 2 year old brother is bigger then she is. I'll make a new montage someday soon :D