sunsetdivingbird
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Lyme disease
Lyme disease is devastating millions of lives worldwide, and everyone is at risk. For more info about Lyme, go to LymePa.org, ILADS.org or LymeNet.com.
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Under Our Skin: Theatrical Trailer underourskin - 37 views - 1 day ago
From the documentary film UNDER OUR SKIN, an infectious film about microbes, money and medicine. Learn more at www.underourskin.com.
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Lyme Disease: A Clear and Present Danger sunsetdiv... - 13,301 views - 1 year ago
This 2006/2007 video was produced by Starving Artist Pictures and Crosse Media for Ticked Off and Fed Up, Inc. (TOFU), a 501(c)(3) charitable organization in Gettysburg, Pennsylvania. Please check out their website: http://www.TickedOffandFedUp.c om

For more info about Lyme, go to http://www.LymePa.org or http://www.ilads.org, and watch the documentary "UNDER OUR SKIN: THE UNTOLD STORY OF LYME DISEASE" (an Audience Choice Award finalist at the 2008 Tribeca Film Festival), which will open in theaters June 19, 2009: http://www.underourskin.com
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Lyme Disease TruthAboutLD - 8,589 views - 1 year ago
Lyme Disease Learn about the fastest growing infectious disease in the USA Symptoms,common misdiagnosis,etc. Visit truthaboutlymedisease.com
(Background song Don't stop Dancing by Creed from their CD "Weathered") This video was made by a mother and son suffering the horrible effects of Lyme Disease. We can be reached at the website above for further help finding a doctor or support.
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VVH-TV News -- Lyme Disease: Medical Nightmare (Part 1) VVHTV - 20,538 views - 1 year ago
Lyme disease -- it has become epidemic on Long Island and much of the New
York Metropolitan Area, indeed across the United States. But as bad as the
illness has become, so has treatment for it -- health insurers have
discouraged long-term treatment for what is often a long-term illness.
Suffolk County Long Island Legislator Edward Romaine recently held a
public meeting on Lyme disease.
Eva Haughie, President, Empire State Lyme Disease Association. She has
had Lyme disease for nearly 20 years. Her association is based in Manorville. Dr. Joseph Burrascano, East Hampton, New York He is a pioneer in the
treatment of Lyme disease. And because of the push by medical insurers to
only cover short-term treatment -- two, three or four weeks of antibiotics
-- and Dr. Burrascano having developed a protocol for treating the many
people who are not cured in the short-term but have chronic Lyme disease,
he ended up being attacked. But he came through it and is regarded as a
major leader in the field. Staci Grodin, Co-Founder and President, Turn the Corner Foundation. A
Lyme Diseases victim, her Turn the Corner Foundation has raised over $2
million and funded important Lyme disease research. Sandy Berenbaum, Licensed Clinical Social Worker, Brewster, New York. She
has specialized with working with those with chronic Lyme disease. Her
accounts were most poignant, and her explanation of why health
insurers balk at providing compensation for long-term treatment most illuminating. Diane Blanchard, President, Time for Lyme. A former resident of Westhampton, where she and members of her family contracted Lyme disease, she presently lives in Greenwich, Connectcut. Her organization, Time for Lyme, focuses on education and research. Suffolk County Health Commissioner Dr. Humayan Chaudhry. confirms how Lyme disease has become "endemic". Suffolk County Legislator Edward Romaine New York State Assemblyman Fred W. Thiele, Jr., Sag Harbor, New York who
talks about the bill he has before the New York State Assembly requiring
health insurers to provide compensation for long-term treatment of Lyme
diseases -- a measure that has been bottled up in Albany. Shelter Island Town Supervisor Alfred Kilb, Jr. Shelter Island has long
been a particular hotspot for Lyme disease and Kilb describes Shelter
Islanders he knows with chronic cases of the disease.

(c) Video Voice, Inc. 2007 all rights reserved.
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VVH-TV News -- Lyme Disease: Medical Nightmare (Part 2) VVHTV - 6,959 views - 1 year ago
Lyme disease -- it has become epidemic on Long Island and much of the New
York Metropolitan Area, indeed across the United States. But as bad as the
illness has become, so has treatment for it -- health insurers have
discouraged long-term treatment for what is often a long-term illness.
Suffolk County Long Island Legislator Edward Romaine recently held a
public meeting on Lyme disease.
Eva Haughie, President, Empire State Lyme Disease Association. She has
had Lyme disease for nearly 20 years. Her association is based in Manorville. Dr. Joseph Burrascano, East Hampton, New York He is a pioneer in the
treatment of Lyme disease. And because of the push by medical insurers to
only cover short-term treatment -- two, three or four weeks of antibiotics
-- and Dr. Burrascano having developed a protocol for treating the many
people who are not cured in the short-term but have chronic Lyme disease,
he ended up being attacked. But he came through it and is regarded as a
major leader in the field. Staci Grodin, Co-Founder and President, Turn the Corner Foundation. A
Lyme Diseases victim, her Turn the Corner Foundation has raised over $2
million and funded important Lyme disease research. Sandy Berenbaum, Licensed Clinical Social Worker, Brewster, New York. She
has specialized with working with those with chronic Lyme disease. Her
accounts were most poignant, and her explanation of why health
insurers balk at providing compensation for long-term treatment most illuminating. Diane Blanchard, President, Time for Lyme. A former resident of Westhampton, where she and members of her family contracted Lyme disease, she presently lives in Greenwich, Connectcut. Her organization, Time for Lyme, focuses on education and research. Suffolk County Health Commissioner Dr. Humayan Chaudhry. confirms how Lyme disease has become "endemic". Suffolk County Legislator Edward Romaine New York State Assemblyman Fred W. Thiele, Jr., Sag Harbor, New York who
talks about the bill he has before the New York State Assembly requiring
health insurers to provide compensation for long-term treatment of Lyme
diseases -- a measure that has been bottled up in Albany. Shelter Island Town Supervisor Alfred Kilb, Jr. Shelter Island has long
been a particular hotspot for Lyme disease and Kilb describes Shelter
Islanders he knows with chronic cases of the disease.

(c) Video Voice, Inc. 2007 all rights reserved.
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Under Our Skin: Leslie W. Remembered underourskin - 17 views - 6 hours ago
From the documentary film UNDER OUR SKIN, an infectious film about microbes, money and medicine. Learn more at www.underourskin.com.
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Mary McDonnell Talk On Lyme Disease at Columbia U. tvcee15 - 13,219 views - 2 years ago
Mary McDonnell is the spokesperson for the Lyme Disease Association (www.lymediseaseassociation.or g). Here is her keynote address for the opening of the new Columbia University Chronic Lyme Disease Center. Also be sure to check out: www.lymediseasefilm.com "Under Our Skin: The Untold Story of Lyme Disease"
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Lyme Disease Destroys The Mind thane17 - 998 views - 2 months ago
Lyme Brain
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Invisible Illness Week Awareness Video restmin - 5,365 views - 2 years ago
This video is meant to inform, educate and encourage those whose lives are impacted by invisible illness. Produced by Rest Ministries, NICIAW's sponsor.
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The Ugly truth About Lyme Disease blackroze... - 15,882 views - 2 years ago
Lyme's Truths.
with the following info.
Remember they said Lyme Disease can't Kill.
Yet they Knew about this Disease Since the early 1970's
From 1989-2001 Most case was never reported.
As a result their isn't a liable count of case's, nor proof of the out comes.
They chose to heed the warnings. Now how many suffer, and are inflicted by this disease.
Now adding insult to injury they say Chronic Lyme disease doesn't exists
Tell that to all the people that have on going suffering.
The Ugly truth About Lyme Disease now revived.
.This is Prof it can, and does. Are cases are not being counted, but blamed on other causes. Which the underlining cause was resulted by Lyme Disease.
In memory of Peter Thomas, and all others Victims that lost the battle with Lyme Disease.
Due to cries unheard.
YOUR DEATH HAS NOT BEEN IN VAIN. But a voice to the survivors. From the mouth of a survivor, even thow I'm not frank I'm just like him as many others are from this disease
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Lyme Disease fightlyme... - 291 views - 2 months ago
Stories of Lyme disease victims, caused by a tick bite. Lyme disease leads to multi-symptom complications, including heart disease, joint swelling, fatigue, and a life of severe pain. Some of the coinfections of Lyme disease are Ehrlichiosis, Bartonella, and Babesiosis. http://www.tickedoffandfedup.c om, contact us at fightlyme@yahoo.com. Visit our You Tube channel at: http://www.youtube.com/fightly metofu
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Spirochetes that cause Lyme Disease LymeDisea... - 10,056 views - 2 years ago
Video of spirochetes. http://www.lyme-disease-resear ch-database.com. The Lyme Disease Research Database is an on going database of lyme research, articles, news, therapies and lifestyle support resources.
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sunsetdivingbird  
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Age:
36
Joined:
August 24, 2006
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About Me: I've had Lyme disease for at least 16 years (probably 22 years) but was only diagnosed with it a few years ago. Lyme treatments have been helping me, but I'm still very sick, and may never fully recover because I went misdiagnosed for so long.

And I'm one of the lucky ones, because I have been able to get treatment at all. To quote author Amy Tan:

"As a [Lyme] patient, I have joined a club of people with a stigmatized disease that many doctors do not want to treat. While I have been lucky enough to find a doctor who is willing to provide open-ended treatment -and I have the means to pay for it- many of my fellow Lyme patients have gone without appropriate care. As a consequence, they have lost their health, their jobs, their homes, their marriages, and even their lives." (You can read her Lyme story at AmyTan.net)

Lyme is prevalent all over North America and throughout the world. There are at least 220,000 new cases of Lyme every year in the U.S.-- more than three times the number of new cases of HIV and West Nile Virus combined!

To learn about Lyme and how to prevent it, see my "Lyme disease" playlist, and go to LymePa.org, ILADS.org, TruthAboutLymeDisease.com, or LymeNet.com... and be sure to watch the award-winning documentary "UNDER OUR SKIN," which is now in theaters... more info at UnderOurSkin.com.

To learn more about the Lyme controversy in the U.S., see this article:
myleftnutmeg.com/showDiary.do? diaryId=8493 (take out the space)

background image: flickr.com/photos/siriwan/4771 67092
Hometown:
Boston, MA
Country:
United States