Profile
Name:
Shelley
Channel Views:
12,380
Total Upload Views:
29,613
Joined:
Oct 5, 2008
Latest Activity:
1 month ago
Subscribers:
27
Website:
Scleroderma research, support, education and awareness, including videos, blogs, and forums.
About Me:
Country:
United States
Occupation:
Founder and President of the nonprofit International Scleroderma Network at sclero.org
Channel Comments
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Sprtwareor
(3 years ago)
Thank you for sharing your story. My father died of scleroderma in 1993 after suffering for several years before he was diagnosed. By then his symptoms were progressive and systemic. It is a shame that because of the rarity of the disease, most doctors are unfamiliar with the symptoms. Your efforts at educating the populace are much appreciated.
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mariamarcellos
(3 years ago)
I would like to hear from other sufferers from this disease. I live in Australia.
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mariamarcellos
(3 years ago)
I am a scleroderma sufferer. I just finished typing, and cannot get my comment posted. I am trying to communicate with other sufferers. I am "last stage". Confined to bed for 2 years, and a wheelchair. I hope I can get this posted, otherwise, I will give up.
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bethsheeba3
(3 years ago)
Thank you for this channel.
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