About this user
I am 41 years young...I have a neurological problem called Chorea-acanthocytosis this is a Huntington's like diseases. I do a lot of dancing..good thing I like to dance lol. I am in pain a lot and I am now wheelchair bound and the only time I get out of the house is to go to the dr's. I can't seem to find out anything about this on youtube, so if anyone knows or has this just give me a shout. I love people and to laugh a lot. I try to look at the brighter side of things and my favorite saying is Things happen for a reason. I have recently found out that I also have Dystonia attacks. Sometimes they aren't that bad...but other times I have to take that trip to the ER...it is pretty bad when you know almost everyone in the ER in your hometown. They can last anywhere between 30 mins to 4 hours...that is the bad ones.....I have also had four TIA's since July of 09..I am haveing the TIA's due to three blood disorders that I have and they are causing my progression of the huntington's-like diease to progress quicker than any of us would like....now I am sundowning some in the evening for a bit.....just got out of the hospital from having my fourth tia within less that a month of each other....
Age
43
Country
United States
Occupation
Used to be a CNA...was my passion
