rcsmith2's channel

Our 11 year old daughter has Marfan Syndrome and has had 4 years of surgery to correct a scoliosis. This is our journey so far. If you are facing s...

Shows children and teens who have Marfan syndrome. (Photos generously provided by Rick Guidotti/Positive Exposure and Timothy D. Joyce)

Our 11 year old daughter has Marfan Syndrome and has had 4 years of surgery to correct a scoliosis. This is our journey so far. If you are facing s...

we went for a walk and got stuck !

was with the family at the coast at the weekend watching waves coming over the sea wall.. Rachel was videoing on her phone and didnt see the wave c...

Our 7 yr old daughter has Marfan Syndrome and has just had surgery to insert growth rods to correct a scoliosis. This is our journey so far. If you...