Rare Disease Day, 29 Feb 2012
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Rare Disease Day, 29 Feb 2012
rarediseaseday
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February 29, 2012 marks the fifth international Rare Disease Day coordinated by EURORDIS and organised with rare disease national alliances in 25 European countries. "Soli...
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4th National Rare Disease Day Amsterdam
rarediseaseday
25 views
On Saturday, February 25, 2012 is the fifth Rare Diseases Day at the Dolphinarium in Harderwijk. On this day we will hand out two Angel Awards to both a patient (represent...
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You'll never walk alone with aHUS
rarediseaseday
33 views
I put together this mini video to show that you are not alone just because you have a rare disease. It also shows the links if you want to get in touch with with relevant p...
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Rare Disease Day 2012 - Benjamin Aguallo
rarediseaseday
61 views
Video of Benjamin Aguallo as he deals with atypical HUS.
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FUORI DAL BUIO | OUT OF DARKNESS
rarediseaseday
60 views
TRAILER del Video-Documentario del percorso formativo sul tema delle Malattie Rare effettuato con gli Studenti delle scuole superiori di Modena che hanno aderito al progett...
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CADASIL Rare Disease
rarediseaseday
40 views
CADASIL - Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy
A family living with CADASIL.
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A Rare One By Lou Anne
rarediseaseday
7 views
Notre fille Lou-Anne est atteinte depuis ses 10 mois d'un SHUa sur mutation du C3. Cette vidéo retrace sa vie depuis la naissance jusqu'à la greffe rénale rendue possible g...
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5 minutes
rarediseaseday
46 views
a quick informational video for rare disease day.
Feel free to use it or not as you wish. this email will serve as a full general release for its use if should decide to use.
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UK Potsies/Postural Orthostatic Tachycardia Syndrome
rarediseaseday
13 views
We are an organisation run by and for people who suffer with the rare chronic condition called Postural Orthostatic Tachycardia Syndrome. It is a form of Dysautonomia. We a...
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Adam's Fight
rarediseaseday
26 views
This video is a slide show about Adam and the fight that he is just beginning ... a fight for his life against Duchenne Muscular Dystrophy.
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About Rare Disease Day, 29 Feb 2012
February 29, 2012 marks the fifth international Rare Disease Day coordinated by EURORDIS and organised with rare disease national alliances in 25 European countries.On this day hundreds of patient organisations from more than 40 countries worldwide are organsing awareness-raising activities converging around the slogan "Rare but strong together".
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February 29, 2012 marks the fifth international Rare Disease Day coordinated by EURORDIS and organised with rare disease national alliances in 25 European countries.On this day hundreds of patient organisations from more than 40 countries worldwid...
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