Rare Disease Day, 29 Feb 2012
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ROHHAD our children's battle
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Here is a video about ROHHAD and alot of the children that have this rare and incurable syndrome.
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Rare but strong together in Krizevci
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International Rare Diseases Day
February 29th, 2012 is the day that marks the fifth Anniversary of the International Day of Rare Diseases. This year it is held under the s...
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Cody's Battle with ROHHAD
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Cody has had to battle with ROHHAD a rare and incurable syndrome for the past 2 years. The doctors do not know how to treat him. This is a photo story over the last 2 years...
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CF adult
rarediseaseday
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Aneta from Poland talk about CF and work activities
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foundation matio about CF
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Pawel Wojtowicz talk about CF
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Christian's lifelong battle with Atypical HUS
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Christian's Conquest releases it's first video made to the incredible song Wires by Athlete. See more info at http://www.christiansconquest.org
The video chronicles Chri...
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Marco Vignale's rare disorder
rarediseaseday
17 views
Myofibrillar Myopathy (MFM) refers to a genetically heterogeneous group of adult onset disorders sharing a homogeneous morphological pattern. Unlike typical MFM, which pres...
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Alyssa's story aHUS
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At 21 years old Alyssa went through renal failure and was diagnosed with aHUS. After two years of being on dialysis she was blessed to get a kidney transplant. Fighting a l...
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Stephanie Handler: Discovering Glaucoma
rarediseaseday
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Having no family history of glaucoma, I was diagnosed at a young age with the disease. I share my story in an effort to create greater awareness around eye health. For more...
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Brody's Journey
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Brody's fight against Atypical HUS. Photo slideshow.
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About Rare Disease Day, 29 Feb 2012
February 29, 2012 marks the fifth international Rare Disease Day coordinated by EURORDIS and organised with rare disease national alliances in 25 European countries.On this day hundreds of patient organisations from more than 40 countries worldwide are organsing awareness-raising activities converging around the slogan "Rare but strong together".
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February 29, 2012 marks the fifth international Rare Disease Day coordinated by EURORDIS and organised with rare disease national alliances in 25 European countries.On this day hundreds of patient organisations from more than 40 countries worldwid...
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