Unique - Rare Chromosome Disorder Support Group
Rarechromo's Channel
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Rarechromo
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Profile
 
Name:
Unique
Channel Views:
2,534
Total Upload Views:
575
Age:
37
Joined:
Dec 19, 2008
Latest Activity:
3 months ago
Subscribers:
28
Unique provides support and information to anyone affected by a rare chromosome disorder, their families, carers and the medical professionals working with them. Rare chromosome disorders are lifelong condisions affecting 1 in 200 live-born babies, often causing severe physical and learning disabilities. We want to raise awareness of these disorders to ensure all sufferers receive the care, support and respect they deserve.

Check out our website at: http://www.rarechromo.org
Country:
United Kingdom
Subscriptions (1)
Recent Activity  
Rarechromo favorited a video (3 months ago)
Clementine was born with a rare genetic disorder called 1q21 deletion syndrome. This video was made to reach out to any others with this condition...   more
 
 
Rarechromo liked a video (3 months ago)
Clementine was born with a rare genetic disorder called 1q21 deletion syndrome. This video was made to reach out to any others with this condition...   more
 
 
Rarechromo subscribed to cafamily (9 months ago)
Parents with disabled children discuss their experiences of taking part in workshops and roleplays, and how those events have helped them.
 
 
Rarechromo favorited a video (9 months ago)
A member of our freephone helpline outlines the various routes families with disabled children can take in order to receive extra financial assista...   more
 
 
Rarechromo ...
(9 months ago)
This video has been made in support of all children and young people affected by a rarer chromosome disorder and Unique, the chromosome disorder ne...   more
 
Channel Comments
MajHunter (1 year ago)
Excellent job, this video is wonderful especially for families and friends in the beginning stages of learning about chromosomal changes, well done!
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