Parent Project Muscular Dystrophy
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Duchenne With A Future: The Power To Live
ParentProjectMD
1,080 views
Duchenne Muscular Dystrophy is the most common fatal genetic disorder diagnosed in childhood, affecting approximately 1 in every 3,500 live male births. Ongoing improvement...
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Webinar: Prescription Drug User Fee Act (PDUFA)
ParentProjectMD
226 views
As PPMD heads into another year advocating in Washington, we encourage all members of our community to learn more about drug development and the FDA.
Get Active!
Actions...
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"No Bad Days" - Hockey coach raises funds & awareness for Duchenne
ParentProjectMD
252 views
CBS Sports Network story featuring Rob Facca, father of Louie Facca (diagnosed with Duchenne muscular dystrophy) and Asst. Ice Hockey Coach at Western Michigan, on how his ...
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Stretches for Duchenne Muscular Dystrophy - Updated 2012
ParentProjectMD
605 views
This video walks you through different types of stretches for Duchenne muscular dystrophy.
A regular stretching regime to keep muscles and tendons supple should be part of...
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Biglycan Webinar
ParentProjectMD
555 views
Biglycan as a protein therapeutic for Duchenne Muscular Dystrophy
Justin R. Fallon, Department of Neuroscience, Brown University
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Webinar: Fat Embolism Syndrome Following Mild Trauma in Duchenne
ParentProjectMD
680 views
With growing concern in the Duchenne community regarding Fat Embolism Syndrone (FES) after a child falls or sustains what would normally be considered a minor injury, Paren...
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I run because...
ParentProjectMD
1,087 views
Duchenne is a fatal genetic disorder diagnosed in early childhood that slowly robs young men of their muscle strength. Help us go the distance to end Duchenne... Learn more...
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DuchenneConnect Direct Access Webinar: Genetic Testing
ParentProjectMD
289 views
DuchenneConnect presents a webinar series that allows you direct access to key figures in the fight to end Duchenne.
Topic: Updates in Genetic Testing.
Speakers:
Madhur...
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DuchenneConnect Direct Access Webinar: Dr. Kathryn Wagner
ParentProjectMD
589 views
DuchenneConnect presents a webinar series that allows you direct access to key figures in the fight to end Duchenne.
The first installment in our series features Dr. Ka...
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Coach to Cure MD Ad 2011
ParentProjectMD
1,614 views
We are pleased to present this year's new Coach To Cure MD ad that will appear on Saturday, September 24 across the country in different markets. But you don't have to wait...
About Parent Project Muscular Dystrophy
Parent Project Muscular Dystrophy (PPMD) is the largest nonprofit organization in the United States focused entirely on Duchenne muscular dystrophy.
We take a comprehensive approach in the fight against Duchenne—funding research, raising awareness, promoting advocacy, connecting the community, and broadening treatment options. Only this comprehensive approach will lead to the day that 100% of those diagnosed can turn to a treatment that will lead to the end of Duchenne muscular dystrophy.
Parent Project Muscular Dystrophy (PPMD) is the largest nonprofit organization in the United States focused entirely on Duchenne muscular dystrophy.
We take a comprehensive approach in the fight against Duchenne—funding research, raising awaren...
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