nakkisoddeseigh's channel
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1 month ago
Finding Nemo - Just Keep Swimming
Dori's philosophy on life...
nakkisoddeseigh
commented:
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3 months ago
Swallow: A Documentary - Dysphagia
To help the cause please donate at http://www.nfosd.com
We give our most sincere thanks to everyone in this film for sharing their stories and all...
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3 months ago
nakkisoddeseigh
commented:
Thank you so much for making this, I got my j-tube (it's name is Jerome) last year after years of fighting with doctors and 5 aspiration pneumonias. My dysphagia stems from a genetic disorder I have called Ehlers Danlos Syndrome and a secondary condition called Dysautonomia, neither have treatmen...
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7 months ago
Ehlers Danlos Syndrome
How I've been affected living with Ehlers Danlos Syndrome
nakkisoddeseigh
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7 months ago
nakkisoddeseigh
commented:
I did the prolotherapy thing, it doesn't work for everyone.
What it does is makes us produce more crappy collagen, and that's why it often fails for EDSers. And no you haven't been lied to, there is reading and conference sessions on prolotherapy, just not enough people know about the potential b...
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8 months ago
Didgeridoo, Irish Whistle and Djembe Jam!
Didgeridoo, Irish Whistle and Djembe Jam!
http://www.didgeridoobreath...
For more Didgeridoo Videos, Didgeridoo Lessons & How To Play Didgerido...
nakkisoddeseigh
commented:
This made my day!!
Keep playing!
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8 months ago
nakkisoddeseigh
liked
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8 months ago
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8 months ago
Kick that Pavlovian dog in the butt !!!
Thanks to our lovely friend Kerrilynn for pointing out that it's Pavlovian, not Pathelonion!!!
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8 months ago
Going nutso in the ER waiting for a room
The time I was admitted because of out of control reflux, through my J-tube that was dangerous becuase of dysphagia and dysautonomia
nakkisoddeseigh
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10 months ago
Coming back to life from Dysautonomia
My wild ride with dysautonomia
nakkisoddeseigh
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10 months ago
Monkeys April Fools Fail
Monkey wanted me to make another video, this was how he did April Fool's
nakkisoddeseigh
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10 months ago
nakkisoddeseigh
commented:
Before anyone else posts something about the title, Monkey uses the terms "fail" or "win" just like his typically developing peers, in appropriate context. He coined the term "April Fool's Fail" himself and laughed about the whole thing for the rest of the day.
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11 months ago
Giant Stinson Beach Bubbles (Canon 550D)
Bubble-smith Sterling Johnson on Stinson Beach
Canon 550D T2i test footage music by incompetech.com
stinson beach bubbles canon 550d t2i test foo...
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11 months ago
THE CHARTER FOR COMPASSION
AFFIRM the Charter today: http://charterforcompassion...
Video Produced by: Captain & The Fox (captainandthefox.com) in partnership with WORKSHO...
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11 months ago
PS22 Chorus "I'LL STAND BY YOU" The Pretenders
http://ps22chorus.blogspot.com
There are some days that the chorus just gets me, and today those kids got me good. This is one of the most beaut...
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11 months ago
"FIREWORK" PS22 Chorus & Ithacappella & Adiza (by Katy Perry )
http://ps22chorus.blogspot.com
http://ithacappella.tumblr.com
Today the PS22 Chorus rejoined forces with Ithacappella, the amazing a cappella men'...
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11 months ago
Sesame Street - I Don't Want To Live On The Moon (cover by Ben-Ezra Sound Project)
Yes, it's a song from Sesame Street. It was written by Jeff Moss in 1978 and I think it's one of the greatest songs ever written. Decided to pull o...
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11 months ago
March 5 2011 Yonge Dundas
Another protest to push for a full public inquiry from the disaster that was the G20 summit in Toronto. The police were pro-stars at violating the ...
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11 months ago
nakkisoddeseigh
commented:
@imNOTtheone,
This protest like all the others I've been to was held on a weekend, so no work for me. I'm also disabled and can't work anymore(my other videos will explain) I used to teach kids with autism and other developmental disabilities, so I'm back in school for something that I can do whi...
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1 year ago
Life with dysautonomia caused by Ehlers Danlos Syndrome
9.5 months ago I entered the world of dysautonomia...it's been a wild ride
nakkisoddeseigh
uploaded
About nakkisoddeseigh's channel
As a girl who's stuck with two deadly conditions that have no treatment or cure, this clip gets me and my other sick friends through some really rough days. I've copied/pasted the link for this on facebook countless times, and it never gets old. Thanks for posting this video, and keeping a huge g...