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5 days ago
momgroebner
liked
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5 days ago
Clash of the Giants
The Gods of the Game from BPL to Serie A converge for 1 Giant Week of Live and Classic matches.
wormontheweb • 10 views
momgroebner
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1 month ago
What About Me
This is my updated. Video Contains only PHer's their families and their creative ideas.
330 views
momgroebner
uploaded
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3 months ago
2011 Annual Taylor's Wish 5K - After the Race
TaylorsWish.org was created in memory of Taylor Renee Caffrey, our daughter and Brooke's twin sister. She lost her battle with Pulmonary Hypertensi...
CurePH • 161 views
momgroebner
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4 months ago
momgroebner
commented:
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5 months ago
momgroebner
liked
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7 months ago
ayiesha woods beauty fanvid
a compilation of pics for the song beauty
jensdean4life • 25,408 views
momgroebner
favorited
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11 months ago
momgroebner
liked
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11 months ago
momgroebner
commented:
My daughter brought a friend to know Jesus with this song. Thank you.
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9 months ago
momgroebner
liked
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9 months ago
My Breathtaking Story
PHA Europe
PHA Europe created the video of PH Patient, Rosie, to raise awareness of PH, a breathtaking disease which can kill. PH can affect anyone...
eurordis • 68 views
momgroebner
liked
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9 months ago
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9 months ago
momgroebner
favorited
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10 months ago
CDG Patient representative, Vanessa Ferreira talks about CDG, Congenital Disorders of Glycosylation
Vanessa Ferreira President and Founder for Portuguese Association for CDG and other Rare Metabolic Diseases (APCDG-DMR), speaking about CDG, Congen...
eurordis • 101 views
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10 months ago
Christel Nourissier speaks about the second French National Plan for Rare Diseases
EURORDIS General Secretary and founding member of the French National Alliance for Rare Diseases (Alliance Maladies Rares) Christel Nourissier spea...
eurordis • 211 views
momgroebner
liked
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1 year ago
momgroebner
favorited
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1 year ago
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This Video was made so that all PHers can know they are not alone and they can all ask "WHAT ABOUT ME".. My little girl has it and all she ask is for a cure...